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Swimmom82 Posts: 456
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It is quite strange! I feel like every time I move my head I get zapped. I can move a leg and change the intensity, or an arm... When I sneeze, I get zapped! I am hoping the next day is an adjustment period, and I will get use to it. I dont know what I was expecting, but I dont think I was thinking it was going to be so intense!
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mike1024 Posts: 884
VIP Member
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Hi Swimmom,didn't they show you how to adjust the stimulation I would get in touch with the Rep that assisted with the SCS and have them readjust it you should not be feeling like you are getting zapped.I would also call the Doctor and explain the situation to him. Mike |
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cfthb Posts: 499
Group Leader
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Hi Swimmom! I'm glad the surgery is over, but those "zaps" you describe don't sound at all right. You have a power unit where you can adjust intensity, frequency, etc., as well as turn the power on & off, right? If you can't turn down the intensity, there's something wrong with the unit, and I'd call your PMP. I don't remember anything like you describe when mine was installed. I've never heard of something like a sneeze setting off an SCS unit, and I'm having a hard time visualizing how something like that could happen. Whatever's causing it, it sure can't be good. Can you tell if you're getting any pain relief, or is the zapping too much interference? Unless you're getting significant pain relief, I'd personally not turn the thing on again until your PMP and the service tech. can see it. I really don't like stray electricity inside my body! Good luck, and please keep us posted on your progress. Howard T. Howard Black, Ph.D. - Medicinal Chemist, Jazz Guitarist, Webmaster, RSD patient in remission.
RSD INFORMATION SITE: http://thblack.com/links/RSD/ (completely non-profit).
IMPORTANT: Although I have a Ph.D. in medicinal chemistry, I am not a medical doctor, and nothing I write should be construed as medical advice. That's for your own physician. |
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maddiesgram Posts: 2083
Senior Member
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Thinking of you, Swimmom!!! hugs, gail |
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cindy61 Posts: 538
Member
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I got zapped when I would move my neck but the wires were put in my neck. Since it's not the perminant one it will move a little more. Where did they put the wires in your lower back, midback or neck? That would make the difference. Since mine were in the neck I would just dial it down or change the type of vibration. Hope this helps? Cindy |
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Chrissy33rsd Posts: 49
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We are all here for you! Talk to your dr about the zapping thing and give it some time. Remember we have to do something or our quality of life makes a steep decline in five years. At least from what i have read. My procedure went well too and i am a little uncomfortable but i hope it will stop the spread. Keep your chin up. Chrissy |
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Swimmom82 Posts: 456
Member
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The wires are right below my neck. It is deffinately getting better, and the zapping is less. When I turned the intensity down, it pretty much didnt do anything. At this point, its strong, but not a bad feeling. Its so strange to control the vibration by turning my head. When I turn my head down and to the right, the vibration goes down my right arm. Same to the left. I can deffinately feel some pain relief!! The only problem is, most of my pain is in the top of my shoulder, and the vibration is tough to get up that far. It does go up there, but its mostly from my bicept down! Thank you all for your help and support. This has been a very challenging time for me, and still is. This is not an easy decision. The fact that my husband is grossed out by it makes it all that much harder! |
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mike1024 Posts: 884
VIP Member
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I would still let your Doctor know about the zapping maybe they can reprogram the SCS for you.I forgot is this just the trial or the permanent one.If it is the trial the wires do have a tendency to move a little that could be what is causing the zapping. Mike |
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maddiesgram Posts: 2083
Senior Member
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Swimmom, I'm so glad for the pain relief you've had! It sounds like a mixed bad but still positive. I'm a little mad at your husband right now (sorry) but think he'll get use to it soon. Probably seeing you feel better will help change his response. About 30 years ago I had a melanoma skin cancer and had to have a skin graft put onto my wrist. When my husband (now ex) and I saw it, I thought he was going to faint or puke. It was really weird looking, like a shark had taken a bite out of my wrist. He was weird about it, too, and I know that he was grossed out by it. That feels terrible, I know! But, with any surgery, in a few months things look SO MUCH better. Skin heals and scars blend in and it will be so much better. He'll get over it. Try not to worry, because I'm sure he will. My wrist still looks sort of funny and weird, but if I even notice it I think of it as a blessing that I got rid of cancer. When you see your scars and little bump, try to remember what a blessing it can be to give you back some of your life! That's my hope for you. Let us know how it goes with the zaps and things. Did you ever talk to your doctor? I'm glad it's helping. gail |
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rsdcrpsfire Posts: 2022
VIP Member
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Swimmom I'll continue to pray that your SCS works for you. Mine being a lower extremity SCS there are times I get "goosed" especially when I bow or bend my spine. I just hope yours gives you the pain relief you so very much deserve. Hugs, ~Twinkle "Find a place inside where there is joy and...
...the joy will burn out the pain"
~Joseph Campell
__________________________________________
CA Ambassador for the Power of Pain Foundation (POPF) www.powerofpain.org
Statements, advice and opinions offered herein are based entirely on life's experience, circumstance, education and research. I'm not a medical professional. That which I share with you is not intended to replace advice or treatment options by a licensed medical professional.
I am an advocate and spokesperson for Reflex Sympathetic Dystrophy Syndrome/Complex Regional Pain Syndrome.
"However weak our hearts may be, we are not that weak we cannot stand the pain, and, however strong we may be, we are not so strong that pain can't touch us!"
"I fight, you fight, we fight together". ~KurtisV
www.RSDAdvisory.com- Where Chronic Pain & Depression Collide |
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