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maddiesgram Posts: 2067
Senior Member
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I don't get any itching, but hate it when the burning is extremely high as it is tonight and it feels like my feet are being burned from the inside out. Someone asked me if it was like sunburn and I said that it wasn't, but it feels like an iron inside my feet burning the inside rather than outside of my skin. Right now tonight I am so miserable. gail |
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revvanbus Posts: 1982
VIP Member
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Yes and scratching never really helps. I use a benedryl pill 25-50mg and then a combination of benadryl cream and nupercainal cream (2 separate creams). But first I have to isolate the itch, that or treat a whole arm/hand or foot/leg. Until the itch fades it drives me mad! Rev. Rev.
RSD: THE GREAT DECIEVER. IT FOOLS US INTO SEEING OUR PAIN AS INJURY, BELIEVING OUR MOVEMENT WILL BREAK A BONE INSTEAD OF HELPING OUR OSTEOPOROSIS. THE DISEASE FEELS LIKE IT RESIDES IN OUR HANDS/ARMS, FEET/LEGS WHEN IT LIVES IN THE DORSAL HORN Of THE SPINAL CORD AND THE BRAIN PAIN RECEPTOR CELLS. MOVE, REST, MOVE, REST, MOVE. |
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revvanbus Posts: 1982
VIP Member
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Gail, when the burning gets super bad and the Lyrica isn't helping I do have one secret: I have a bedbath container I have filled with fine sand and I bury my feet in the sand. I originally set it up to do the skin sensitivity treatments but found that the soft sand stays cool. So when I can't stand the burn anymore, I use the cool sand to draw the heat down. The sand actually gets hot and my feet cool down. Sometimes all I need to do is just the bottoms of my feet; sometimes all the foot/feet. Sending hugs and prayers that the burn will cool and sleep will be refreshing. Rev. Rev.
RSD: THE GREAT DECIEVER. IT FOOLS US INTO SEEING OUR PAIN AS INJURY, BELIEVING OUR MOVEMENT WILL BREAK A BONE INSTEAD OF HELPING OUR OSTEOPOROSIS. THE DISEASE FEELS LIKE IT RESIDES IN OUR HANDS/ARMS, FEET/LEGS WHEN IT LIVES IN THE DORSAL HORN Of THE SPINAL CORD AND THE BRAIN PAIN RECEPTOR CELLS. MOVE, REST, MOVE, REST, MOVE. |
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maddiesgram Posts: 2067
Senior Member
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Rev, Thank you SO much for a practical tip!!! Tonight my feet are still burning so bad I can hardly take it. And, I need groceries and have no idea how I'm going to get them. Where is an easy place to buy sand? I don't have any. Would anything else work? Rev, have you ever tried Epsom Salts and did it help any if you did? Also, since I can't bear the weight of a sock even, can I bear having my feet in sand? I'm going to get some and try. I'll try almost anything at this point. Thanks again for the tip. If you have others, please share! Sometimes I run a washcloth through cool water and rub my feet with it. But not ice-cold, I've learned better than that. Any prayers would really be appreciated, too. It's getting to where I feel like I'm at the end of a rope that is in bad shape. Thanks. gail |
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revvanbus Posts: 1982
VIP Member
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Gail, this is messy but...Put flour or baking powder or corn stach (all very fine so will not chafe at all) in the refrigerator for half an hour to an hour. Put it in the container. start just with soles of feet and toes. genly with your hands or a sifter cover your feet. Use the damp wash cloth to gently ease the soft dry stuff off your feet or use a fan on your porch to blow it off if you can stand it. Rev Rev.
RSD: THE GREAT DECIEVER. IT FOOLS US INTO SEEING OUR PAIN AS INJURY, BELIEVING OUR MOVEMENT WILL BREAK A BONE INSTEAD OF HELPING OUR OSTEOPOROSIS. THE DISEASE FEELS LIKE IT RESIDES IN OUR HANDS/ARMS, FEET/LEGS WHEN IT LIVES IN THE DORSAL HORN Of THE SPINAL CORD AND THE BRAIN PAIN RECEPTOR CELLS. MOVE, REST, MOVE, REST, MOVE. |
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maddiesgram Posts: 2067
Senior Member
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Rev, Thanks so much for another tip! I really do appreciate it. I do have some of those things so will try it. Thanks again! gail |
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rsdcrpsfire Posts: 2022
VIP Member
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Hi Luckyduck I get a very similar sensation. It drives me nuts because I can't get to it. Can't scratch it, Oh I try, but I just can't get it. I put the Lidoderme Patches on, but they barely penetrate beneath the surface. Warmest wishes to you, ~Twinkle "Find a place inside where there is joy and...
...the joy will burn out the pain"
~Joseph Campell
__________________________________________
CA Ambassador for the Power of Pain Foundation (POPF) www.powerofpain.org
Statements, advice and opinions offered herein are based entirely on life's experience, circumstance, education and research. I'm not a medical professional. That which I share with you is not intended to replace advice or treatment options by a licensed medical professional.
I am an advocate and spokesperson for Reflex Sympathetic Dystrophy Syndrome/Complex Regional Pain Syndrome.
"However weak our hearts may be, we are not that weak we cannot stand the pain, and, however strong we may be, we are not so strong that pain can't touch us!"
"I fight, you fight, we fight together". ~KurtisV
www.RSDAdvisory.com- Where Chronic Pain & Depression Collide |
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cfthb Posts: 489
Group Leader
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Hi Twinkle (and other itchers) - When I was having the horrible itching I used a cream called EMLA(tm), which stands for "Eutectic Mixture of Local Anesthetics". Makes sense, because it's a 50:50 mixture of prilocaine and lidocaine (if you really want to know what "eutectic" means, please PM me). For several reasons, the mixture of the two agents penetrates the skin more easily, comes on faster, and has a longer duration of action than either of two constituent agents individually. Like any medication, it works great for many, and not as well with others. But, if itching is ruining your waking time and sometimes feels like it's challenging your sanity, I really suggest discussing EMLA with your PMP or even your PCP. It's not like it's controlled or anything.  Howard Post edited by: cfthb, at: 03/17/2012 11:08 AM T. Howard Black, Ph.D. - Medicinal Chemist, Jazz Guitarist, Webmaster, RSD patient in remission.
RSD INFORMATION SITE: http://thblack.com/links/RSD/ (completely non-profit).
IMPORTANT: Although I have a Ph.D. in medicinal chemistry, I am not a medical doctor, and nothing I write should be construed as medical advice. That's for your own physician. |
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rsdcrpsfire Posts: 2022
VIP Member
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Thank you Howard! Just thinking of being able to have a cream to rub in with Prilocaine and Lidocaine made me go oooh ahhhh. So am for sure going to ask about it. I really appreciate you recommending it. Thanks again, ~Twinkle "Find a place inside where there is joy and...
...the joy will burn out the pain"
~Joseph Campell
__________________________________________
CA Ambassador for the Power of Pain Foundation (POPF) www.powerofpain.org
Statements, advice and opinions offered herein are based entirely on life's experience, circumstance, education and research. I'm not a medical professional. That which I share with you is not intended to replace advice or treatment options by a licensed medical professional.
I am an advocate and spokesperson for Reflex Sympathetic Dystrophy Syndrome/Complex Regional Pain Syndrome.
"However weak our hearts may be, we are not that weak we cannot stand the pain, and, however strong we may be, we are not so strong that pain can't touch us!"
"I fight, you fight, we fight together". ~KurtisV
www.RSDAdvisory.com- Where Chronic Pain & Depression Collide |
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revvanbus Posts: 1982
VIP Member
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Howard, thanks for the itching tip. I will check the cream out to see if I can take it. There are times when the itching is so painful it is very near a 9-10 range. The itch does not respond well to my mind-body pain techniques. So it can be more painful than the burning/electric/bone pain. So if this takes it down a few levels, think what a blessing that will be. Thank you, friend. Rev. Rev.
RSD: THE GREAT DECIEVER. IT FOOLS US INTO SEEING OUR PAIN AS INJURY, BELIEVING OUR MOVEMENT WILL BREAK A BONE INSTEAD OF HELPING OUR OSTEOPOROSIS. THE DISEASE FEELS LIKE IT RESIDES IN OUR HANDS/ARMS, FEET/LEGS WHEN IT LIVES IN THE DORSAL HORN Of THE SPINAL CORD AND THE BRAIN PAIN RECEPTOR CELLS. MOVE, REST, MOVE, REST, MOVE. |
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