In the beginning of the disease for each of us there was a period of getting to know the disease and reading all we could on-line and gathering info, of denial (I could not possibly have this syndrome; I did nothing so bad to deserve it; is is not curable; I can't hurt like this for all my life; the doctors must have made a mistake; how come I have the pain + this new symptom today; let me see what my support group says about this. Oh no, they were very empathetic but said they had it too, maybe it is RSD/CRPS. Finding a pain mixture that works along with other therapies to hold the pain down to a lower level is what we all hope for. It is what your pain management team works to acheive. It won't most of the time happen in the first meetings so you have to be patient. And physical therapy for us is done through some pain. You have to kearn as does your therapist to read your pain and know what is not going to leave you groveling on the floor tomorrow but we have to work in some pain. Never let your therapist put ice on you or follow her/his suggestion that you use ice. That is an absolute NoNo for RSD/CRPS patients. More later as you ask (~: Rev Rev.
RSD: THE GREAT DECIEVER. IT FOOLS US INTO SEEING OUR PAIN AS INJURY, BELIEVING OUR MOVEMENT WILL BREAK A BONE INSTEAD OF HELPING OUR OSTEOPOROSIS. THE DISEASE FEELS LIKE IT RESIDES IN OUR HANDS/ARMS, FEET/LEGS WHEN IT LIVES IN THE DORSAL HORN Of THE SPINAL CORD AND THE BRAIN PAIN RECEPTOR CELLS. MOVE, REST, MOVE, REST, MOVE. |
