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03/26/2011 12:46 PM

Listing of CRPS Physicians?

cfthb
cfthb  
Posts: 873
Group Leader
I'm an Advocate

Is anyone aware of a web site that lists CRPS/RSD physicians? I realize there may not be, since most docs treat conditions in addition to CRPS, but I keep getting asked, and I thought I'd toss it out here. Thanks!

Howard

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03/26/2011 02:52 PM
rsdcrpsfire
rsdcrpsfire  
Posts: 2023
VIP Member
I'm an Advocate

Afternoon Howard

There may be some on Physicans for Patients. www.physicansforpatients.com

I also gathered a few that's on my website, but many of them also include or will include Functional Restoraton programs. Some also include CRPS physicans, I cannot recall which.

http://crpsadvisory.com/crpsa_pain_management_and_frp.html

I hope this helps,

Wishing you the best day possible,

~Twinkle


03/26/2011 04:50 PM
DarkPain
DarkPain  
Posts: 366
Member

Howard, Just saw where you live. I lived in Quincy, IL for about ten years.

I was treated in Indiana starting for my RSD, but didn't get good results until we moved to Florida.

One of the best ways to deal with RSD look ups, is ...well not trying to be a smart alec, but pick up the phone and call around....

My wife called when we got to Florida. First call, BING....got a great doctor.

Just have them call. I am sure that there may be some doctors who know other doctors who do treat RSD.

Dp


05/13/2013 08:18 AM
dadindc
Posts: 4
New Member

My 31 year old son has full-body CRPS and we are thinking about moving to Florida. Who is the doctor that you referenced. Thanks, Rick

05/13/2013 04:33 PM
Rolphster
Rolphster  
Posts: 275
Member

Dadindc- I live in FL. What area are you looking to move to?

05/13/2013 05:14 PM
cfthb
cfthb  
Posts: 873
Group Leader
I'm an Advocate

My site has a page devoted to finding a pain specialist; here's a direct link to the page:

http://www.thblack.com/links/RSD/specialists.htm

The third link, called "All-States-Doctors-List", links to an 85-page PDF file of every pain physician in the country, as complied by RSDSA. They have chosen not to list this on their site, but allowed me to post it. As far as I'm aware, this is the only place on the Internet to get their excellent list.

Take a look; the states are further broken down by county, so it's easy to find a doc close to where you are.

There are also many additional links to sites with utilities for finding CRPS physicians.

Howard

Post edited by: cfthb, at: 05/15/2013 08:19 PM


05/15/2013 12:45 PM
dadindc
Posts: 4
New Member

We have not decided on a specific Florida location since one of the parameters is a location where there is a good pain doctor and warm water therapy available. It would also be nice if there was a facility where he could get his ketamine infusions. We realized that the cold weather is not doable for him and we need to get to warmer weather.

Thanks, Rick


05/15/2013 12:48 PM
dadindc
Posts: 4
New Member

Howard,

I'm not real comfortable with "lists". We had to search for a long time to find a good pain doctor for my son. Some of them we went through were awful and very unaware of how to handle RSD.

Rick


05/15/2013 04:27 PM
jpcrps
jpcrps  
Posts: 1661
Senior Member
I'm an Advocate

Dear Dadindc,

I certainly understand your concerns. Howard has an excellent library of resources, and he also provides a feature to get background information on specific doctors, such as their credentials etc.

Mal, who lives in Florida, has researched the area and undergone the ketamine treatment, so you may want to PM with her if you want to discuss specific doctors by name.

Please see the posting guidelines here:

http://www.mdjunction.com/forums/reflex-sympathetic- dystrophy-discussions/general-support/10635134-welcome- message-and-group-rules-for-the-rsd-support-group

I am sure Howard would not mind if I give a brief taste of the quality of the information he has to offer. His research site has been referenced by severale RSD organization due to the quality of his work.

URL:

http://www.thblack.com/links/RSD/specialists.htm

Quoted from Howard's website link noted above:

It is a sad fact that the typical CRPS/RSD patient sees an average of seven physicians before they're even diagnosed, let alone treated. All of the resources below have either excellent information about finding a pain management specialist or feature a specific utility for searching from their site.

Is Your Doctor Board-Certified? A very useful site where you can look up any physician in the country and determine what board certifications they possess.

Prescriber Checkup a new, excellent utility sponsored by ProPublica, the excellent investigative site. Just enter a physician's name and the state in which s/he practices, and receive a bunch of useful information, including how their prescribing habits compare with their peers, the top 10 drugs they prescribe, etc. This is only for Medicare Part D patients, but with over 35 million people involved, it gives an accurate snapshot of a physician's prescribing profile.

I hope that you will take advantage of both Howard and Mal to help find the best careprovider for your son. It is so difficult to experience CRPS, but it is also extremely difficult for the patient's loved ones.

We welcome you to the group, and hope that you will find the same level of support, friendship and encouragement that I have. (This is why I decided to become a co-leader!)

Aloha,

Jenny


05/15/2013 08:14 PM
cfthb
cfthb  
Posts: 873
Group Leader
I'm an Advocate

Hi Rick -

You say "I'm not real comfortable with "lists"." You must have encountered lousy lists.

The listing supplied by RSDSA is organized by state, then subdivided by city. Florida has three pages of physicians!

This is no randomly-generated list. As is mentioned at the start of the list, concerning the listed physicians, "Each has expressed an interest in treating patients with Complex Regional Pain Syndrome (CRPS) and each has requested that we provide their name to you".

I really doubt that, on this list, you'll find any physicians who are "awful and very unaware of how to handle RSD". Many folks have consulted this list, and I have yet to receive any negative feedback. I think it's at least worth a shot; if it isn't what you want, there are many additional links to similar pages on other sites.

Hope this helps!

Howard

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