Reflex Sympathetic Dystrophy Support Group

Hi everyone;

I am new here,though I've had RSD for 20 some yrs.I want to ask if anyone has tried Hyperbaric oxygen therapy for relief of their RSD pain.

I have had a morphine pump and a scs in the past,but I built up a tolerance to morphine 3 years ago,and the scs actually started causing me additional pain so i have had them both removed.There is nothing that is helping with my pain-I don't sleep hardly at all anymore,maybe 1 or 2 hours,usually I don't even get that much.Is HBOT covered now for RSD? Iappreciate any help that anyone can give me.

Welcome to the group! I tried HBOT once, unfortunately it's not covered by most insurances. It also takes many treatments, or so they say, to tell a difference. It caused issues with my ears so I didnt go back. I saw your other post about ketamine; I would recommend trying it. It is just about the only thing that helps me. If you have any specific questions, let me know. Every doctor does the procedure differently. I have found my form to be quite helpful with almost immediate results (within a few days). The only thing is, your body doesnt respond to it as well with each treatment. My doctor does a 5 day inpatient continuous infusion. feel free to PM if you want to know more.

Hi Darla;

Thanks for your info,I do have more questions on the ketamine treatment that your doctor does.I live in Michigan and am wondering how to find a doctor who does this treatment here-I did call my pain management center a few minutes ago to see if they have heard of the treatment.

Thanks,

Barb

I would look up a list of facilities and call them one by one to see...My doctor is in Ohio if all else fails. Some states (like SC) don't do ketamine treatments for some reason, so you may have to travel, but i can promise you it will be worth it. (it was for me!) I drove 10 hours there and back to my past two infusions. You would just need to bring someone with you.

I will agree - look for a good PMD or Neurologist who has experience using low-dose outpatient ketamine or as I understand it the in-patient lower-dose ketamine given over a few days. I have no experience with the latter but have heard some good results from that. Me, I go with the outpatient: I don't do well in hospitals and avoid them at all costs.(~:

Rev. Maryanne

PS If you want to arrange it with my PMD I can offer a good, comfortable guest bed and some good food for the night before as my PMD likes to do the treatment in the early morning. You have to stay until noon so you are awake and ready for a meal. (you have to skip breakfast.)