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bits Posts: 10313
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I was dxed with Raynauds in 2004. It was bad for the first 2 years and then let up on year 2006. I was dxed with RA in Sep. 07. I have noticed I have very little, if any trouble with Raynauds. I am wondering if it may have something to do with RA meds? Or maybe I was misdiagnoised in 2004. Maybe the dx should have been RA. Anybody else have a similiar thing to happen? When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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gettingoldsucks Posts: 3234
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Vickie, according to what I've read, and Rheumy agrees, it is common for raynauds to show up fast and furiuos, and then stop or slow down immensley as the RA takes over. I hate to think my RA will be worse next winter but I could do without the raynauds. It's been horrible this time around and i don't want it like that again next winter. I don't think your DX was wrong cuz raynauds is secondary to quite a few diseases. Your RA DX was just delayed. Doc was probably just waiting to see what autoimmune disease showed up after your Raynauds started. I had the raynauds, but didn't know what it was and not bad, 2 winters ago, but the joint pain didn't get really, really bad until last June. Be thankful it doesn't bother you anymore. The ra is bad enough to deal with without anything else. Donna
I am not a medical professional. All advice I give is from my own research and personal experience. Please seek medical advice before applying any advice I give. |
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fluffyluggage Posts: 4723
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I could agree with Donna, Vickie. I don't have RA, but that's definitely according to what I've read with Raynaud's, and that it comes and goes in periods, and that it often shows up with other diseases, especially auto-immune diseases, unless you are over 40. If you're over 40, it more commonly shows up alone, but even then, it's far less common. I think Donna's right on this one. JMO... *hugs* Jen  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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bits Posts: 10313
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After reading your posts, I have to agree. I quess we all are just hoping one less thing, huh? I think I knew, in the back of my mind, I still have it. Wonder if we can wish things away? Naaa...tried it. Hugs When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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fluffyluggage Posts: 4723
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It's interesting, because I've had migaines since I was about 8 years old, as far back as I can pinpoint, perhaps longer, but at this point, I guess it doesn't really matter. 26 years is a long time, anyway, right? LOL  At any rate, the first medication I was on, I was on for many years, probably about 10 years, then weaned off. I went up on dosage several times. I just discovered yesterday that it can cause Raynaud's, which explains why I always have had Raynaud's, pretty much as long as I can remember, with no real explanation, tho no one ever diagnosed it, because I never mentioned it. Only my rheumy recently diagnosed it, but of course, as I think I've mentioned, she never bothered to tell me. But I know I've had this feeling forever. In high school, I had to wear jackets and long-sleeved shirts in school when everyone else was perfectly comfy. I could have worn a scarf and ear muffs and gloves, too, to be perfectly honest, cuz honestly, the longer I've had this, the more body parts are affected. My butt, my ears, my nose, my mouth, my hands and feet, but also I get blue splotches on my legs and arms. Only my torso isn't affected. Which is interesting, cuz it makes me wonder if it's something else, but it still matches the description of Raynaud's. And it just gets worse the older I get. My hands and feet and nose get worse the older I get. My butt literally goes to sleep if I let it get too cold, just like my feet and hands. I think it's worse than my nose and ears! Anyway, I guess I was just sympathizing, not really saying much there. I'm getting sleepy early, for once. So I better run before I just run away with your post... Not trying to take over your post, Bits! *hugs* Jen  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.
Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version) |
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bits Posts: 10313
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Hey fluf, what was the med you were on that causes Raynauds? And honey, you run all you want! Helps keep us on our toes. LOL When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and I could say, "I used everything you gave me." ~ Erma Bombeck
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