Pulmonary Hypertension Support Group

Seems like I am constantly gasping for air. The more I gasp the the worse I feel. Is this something I will have to deal with all the time?

When were you diagnosed and have you seen a ph specialist? Sorry if I am repeating things I am new to this group. I see you are from Georgia. We live in Georgia now but I have no idea where your town is. On of the leading PH specialists is at MCG, Dr. Gossage. Shortness of breath is a problem with ph and especially in hot humid weather (Go Georgia!) and in higher elevations. Do you have oxygen prescribed?

I was just recently diagnosed. I am scheduled to see Dr Gossage the end of this month. Grovetown is right outside of Augusta.

I hope he is as good for you as his reputation is. We live just outside of Albany GA. I happen to be in Augusta now. I work with people with bleeding disorders and will be at MCG tomorrow to do a clinic. My daughter was diagnosed 7 years ago. She had a chest x-ray at the local hospital to check for bronchitis (she never had a symptom)and the right side of her heart was grossly enlarged. Next thing I know we are in an ambulance on our way to MCG. Dr. G and his crew did her cardiac cath and gave her the diagnosis. Her pressure was 150 at the time and she needed to be evaluated immediatley for transplant and since they did not do pediatrics in this area all her care was transferred to Shands in Fl. They were amazing to us at MCG and at Shands. Emory has nothing on these places. Trust me I have been a RN for 30 years. I belong to the group on phcentral. There are several people there who also treat with Dr. Gossage. If you are up to meeting with others who treat there they will network.

Good luck to you. If I can help at any time I'm here.

Post edited by: gevilido, at: 05/08/2008 16:25