Pulmonary Fibrosis Support Group

Hello,

Welcome to the Pulmonary Fibrosis Support Group.

This Support Group is a comfort place for family members and friends to share and ask questions regarding IPF.

Feel free to introduce yourself, ask your questions and be around people who are in your spot.

We'll be happy to hear your thoughts on how to make this Pulmonary Fibrosis Support Group better.

Best,

roy

I just have found this website. I became ill in Sept 2000 but was not diagnosed with idiopathic pulmonary fibrosis until Sept 2005. So glad to find it.

Vona,I got ill in 2002,and was Dx'd in 2007.I use oxygen at night and while doing somethings during the day.Please let Me know how Your doing.It is good hearing from People that understands what You are going thru.Take care.

LIN

So good to hear from you. I was really doing well but after the Christmas holidays I think I wore myself out. I got a lung infection so spent 10 days on Levaquin. I am not sure if I am over it or not. I have learned that I need to slow down when I start to feel tired. I have not had to go on oxygen yet. My younger sister who is 50 was diagnosed 2 yrs ago and she is on oxygen. I get to go to a transplant support group meeting tomorrow and am really looking forward to it. Where in the country are you? Take care.Vona

Vona, I live in Oklahoma.I am sorry to hear that Your Sister has Pulmonary fibrosis, do You think that this ran in Your Family?And like You i have learned to slow down.Sometime I just over do it,then pay dearly.

Let Me know how The meetin goes.

LIN