http://www.mdjunction.com/forums/prurigo-nodularis-discussions/feed http://www.mdjunction.com/forums/prurigo-nodularis-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Tue, 21 May 2013 17:07:56 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/10488838-pn-difficulty#10686335 Hi, welcome to the group. I have to apologize for not getting on here sooner. I must have the notification shut off. I will change that when I am done here. As for scar fading, I do not think there really is anything that will fade them. I've read that the otc scar fading creams have to be applied right basically right away for them to work. I have so many scars I would need the whole factory amount in order to rid my body of them. LOL, seriously, yes, they are ugly but we just have to come to... Thu, 16 May 2013 10:15:59 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3714181-now#10567744 I'm sorry it's taken me so long to get on here again. I was on antibiotics that the doctors prescribe for Lyme disease but I'd gotten diarrhea it's thought to have been from the antibiotics. I am getting more and more sores everywhere. It's so sickening.... Fri, 22 Mar 2013 11:30:17 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/10460030-prurigo-nodularis#10460030 Hello I'm new to this site I have been diagnose with PN when I first went to the dermatology the doctors didn't tell me what had I thought it was a skin rash I should have ask question it wasn't until the third visit that I was told by then I look up PN and found out what I had... Tue, 05 Feb 2013 15:49:46 -0800 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1588244-prurigo-nodularismorgellons#10057700 Hi there - I am new to this site as well. I have a recent diagnosis of PN after a few skin biopsies were tested. I have thought I have Morgellons for years - and perhaps I still do - or they are the same thing. These conditions may be closely related I am learning. Anyhow - I have joined that discussion, too, but am really wanting to give and receive support with others, and learn about effective treatments others are doing. feel free to engage any discussion with me too.... Sun, 02 Sep 2012 00:03:34 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3474921-new-and-would-like-some-answers-please#10057697 Hi there - I am new as well. recent diagnosis after a few skin biopsies were tested. I have thought I have Morgellons for years - and perhaps I still do - or they are the same thing. These conditions may be closely related I am learning. Anyhow - I have joined that discussion, too, but am really wanting to give and receive support with others, and learn about effective treatments others are doing. feel free to engage any discussion with me too.... Sun, 02 Sep 2012 00:00:33 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3514488-prurigos-nodulosis#3939294 Hi Sue, did you find anything in spanish? I know if you do find a page in english, it can be translated for you. I was told the samething as you from the dermatologist that had diagnosed me. I now am doing a 24 hr antihistamine in the a.m. and a generic benadryl in the pm. It has been working for me now for about a month or so. Otherwise, if I don't take those, I know right away because I itch terribly without them. Take care!... Sat, 21 Jul 2012 19:06:26 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3562355-today-is-the-daylol#3939284 Totally understand! I've found even when I do cut my nails, if they itch, anything can be used!! :) I've even used my teeth! How awful. I hope you are well.... Sat, 21 Jul 2012 19:03:22 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3297031-i-just-wanted-introduce-myself-fellow-pn-suffere#3678438 Hi Vonnie, My sores/lesions take forever to heal, too. Not all but enough, get infected which really makes it hard to heal. I've told on of my doctors about this and have shown her the fibers. She was interested in it because she'd never seen nor heard of this. I have sores/lesions all over and it makes it so I do not want to expose my skin during the summer. =( I had a real bad day, I'm not sure when but it was awful. I got into a bath, soaked for a while. .It help may a small bit. I was to... Wed, 25 Apr 2012 19:00:30 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/3677049-prurigos-nodulosis#3678404 Thanks, Sue.... Wed, 25 Apr 2012 18:51:11 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/2506110-prurigo-nodularis-videos-on-mdjunction#2518392 Hi - it's me again... I got many PMs from members asking to upload their own videos. At this point we can't add to the library . but hope we will be able to soon, we understand the importance of that! and another (not related) topic...Two weeks ago we added to the (now available on chrome too) the Groupon application that shows you the hottest daily deals in your town, every day. We received great feedback from the people using the toolbar so I suggest trying it out!!! CU roy... Wed, 09 Mar 2011 03:27:52 -0800 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/2339748-hello#2339748 Hello, I was just wondering if anyone ever comes here to read our posts. It seems to me that this group is not going anywhere. I'm the only one posting. :( Anyone out there want to add anything? Come on now, lets here from some of you.... Fri, 21 Jan 2011 08:57:59 -0800 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/2074340-more-on-rare-disease#2074340 I got this off of this site: http://rarediseases.info.nih.gov/GARD/Disease.aspx?PageID=4 diseaseID=7480 Prurigo nodularis is a skin condition characterized by hard crusty lumps that itch intensely. The exact cause of the condition is unknown. However, it can occur in isolation or as a result of repeated trauma to chronic pruritus (itching). Treatment for the condition can be challenging. [1] References Prurigo Nodularis. American Osteopathic College of Dermatology. Available at: ... Thu, 04 Nov 2010 15:28:16 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/2074317-rare-disease#2074317 Hello,I'm having problems putting together an article for our group so I figured I would just put the info in here. I got this info from: http://www.histopathology-india.net/PruNod.htm HISTOPATHOLOGY-INDIA.NET Prurigo Nodularis Dr Sampurna Roy MD Prurigo nodularis is an uncommon lesion that presents as extremely pruritic nodules with a wide anatomical distribution but particularly on extensor aspects of limbs... Thu, 04 Nov 2010 15:18:18 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/medicine-treatments/1881278-antibiotic-same-used-for-lyme#1881278 My doctor wanted me to try a stronger antibiotic to see if it'd clear up some of the lesions and itching. At the time I didn't really have much as far as lesions and itch. I am now broken out real bad so tomorrow I plan on calling her to see if she will call in another script for me. Until then, I've been putting small guaze pieces and antibiotic cream on them. It has been drawing out a lot of pus but boy, this makes them itch! Have any of you tried this before? I looked at the guaze after it ha... Mon, 06 Sep 2010 08:47:22 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1881242-morgellons-support-group#1881242 I wanted to let anyone who needs morgellon disease support know that there is a group specially for that group. Just type in Morgellons in the search. This group is specifically prurigo nodularis although if you do have similar group questions, I will make an exception. ;)... Mon, 06 Sep 2010 08:40:19 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1682726-eyes#1682726 I am curious if anyone has problems with your eyes. I mean, I have dry eyes but what I'm referring to here is do any of you have 'stuff' floating around over your eye where you have problems concentrating on things you are looking at. I find lately when I am looking through my hand-held microscope, it is hard to focus on the item I am viewing because of some stuff going across my eye. The 'stuff' looks sorta like the stringy/thread I've been looking at in the 'crusts' of my skin. No, I've not be... Sun, 11 Jul 2010 00:24:00 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/lounge/1607970-i-see-them-everywhere#1656664 Hi ginan, I'm going to go look up to see what you're talking about. Be right back....see how quick I am? Anyway, yes, I understand. I agree about being warriors. You know, so many of the symptoms are so much the same as fibromyalgia it's unreal. I'm just glad my hubby heard a video I was watching about Morgellons so now he really understands about it and doesn't understand how doctors cannot believe in it when there are fibers. Keep strong!... Sat, 03 Jul 2010 18:57:09 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1606044-how-did-you-get-diagnosed-with-pn#1606044 I was wondering about your diagnosis. How long have you gone without knowing it was PN? What made you go to the doctor? Did your doctor take a skin sample to diagnose at any time? Ok, I think that is enough questions. I'll start. B) I've had skin problems since I was young. I've been diagnosed with dermatitis and eczema so I was pretty surprised when the dermatologist said right away that she knew what it was. My dermatologist did not take a skin sample. I've never had any kind of diagnosis ... Fri, 18 Jun 2010 17:47:17 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1459502-making-the-most-of-the-prurigo-nodularis-support-group-experience#1596403 Ok, I wasn't able to do that. I've since made the picture smaller so, now I'll try it again. Wish me luck! Post edited by: janquito, at: 06/15/2010 07:57 PM... Tue, 15 Jun 2010 19:55:10 -0700 http://www.mdjunction.com/forums/prurigo-nodularis-discussions/general-support/1566366-my-brother-have-pn#1576580 Hi Ede, welcome to the group! I'm sorry to hear your brother has to have this dreaded disease! I've had these basically all over my body. I have been so tired of having to explain to people when they ask what is all over my arms and now the legs. I have many sores/lesions on my back, stomach and butt. I've been reading up on this and there, so far, is no cure. I made another dr appt. to see if she can tell me anything else about this. She just told me I have Prurigo Nodularis and that was that. ... Tue, 08 Jun 2010 22:55:48 -0700