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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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Positive Thinking ForumsGeneral & SupportSurvivors Code of Ethics
10/20/2010 06:34 AM
Irishangel88
Irishangel88
 
Posts: 4933
VIP Member

This is actually something I want you all to do. We all have rights as basic human beings.Now, as adults, we have the power to establish our rights, what we won't allow and what we will allow. And we have the right to stick to that. So, what's your code, your rights?

Post edited by: Irishangel88, at: 10/20/2010 06:40 AM

Diamonds are only made under extreme pressure. So let's sparkle baby :)

She looked in the mirror and thought today....what happened to miss no longer afraid?
Kelly Clarkson- "Miss Independent"

"If you can't handle me at my worst you sure as hell don't deserve me at my best."
Marilyn Monroe

I am not a doctor, and I don't take referrals :)
Reply

10/20/2010 07:34 PM  Top
davesprettylady

I have the right to feel and express my emotions without feeling guilty.

10/21/2010 02:39 PM  Top
Clarita
Clarita
 
Posts: 10829
Group Leader

Irish Angel- Fantastic post!!

Huge heartfelt thanks!

Here are some of bat girl's Survivor Code of EthicsSmile

Have the right to be a wounded warrior.

Have the right to be kooky- have my own style as a bat girl.

Have the right to keep away or keep my distance from negativity vampires.

Have the right to keep any negative family members at a distance.

Have the right to refuse invites to places/dinner parties/special events if it will jeopardise my health/make me more health challenged( cannot always be there for friends or family when they want me to be there due to my various challenges plus the fibro).

Have the right to pamper self from time to time- without feeling guilty for treating self to something lovely.

Have the right to express an opinion even if am in minority as long as am respectful to self plus others.

Have the right to time away from here- breaks, holidays or rest for short periods- without feeling guilty.

Will sign out now- loquacious/talkative bat girl Wink

Laughing !

Excellent post Irish Angel.

Giant gentle hugs, love your friend ClaritaSmilexooxooxoox

Silly thank you in sand


10/21/2010 03:57 PM  Top
Natalia5150
Natalia5150
 
Posts: 3632
VIP Member

I never thought of the issue of boundaries as a code of ethics. But I like that. And am thinking about it seriously.

I have the right to cut off toxic people from my life, without a feeling of shame or guilt, even if it is family.Smile This was when I first realized that I was and am a Fibrowarrior

I have the right to not answer my door, or phone just because I choose not to.

I have the right to support people that I care for in any manner that I can.

Even though I am a GL I am first and foremost a FibroWarrior, and have the right to remember this and be a warrior when I need to and a GL when I can.

(I bring this up because I tend to try and hide my feelings in an attempt to support the other fibrowarriors, and therefore not request support, mea culpa but I need to remember it,Cool )

I can should and must be honest at least with myself about how I really feel.

I have the right, and indeed must let the child in me out to play!

I have the right to feel good about my activities, even if that means accepting that somedays there are no activites.

I have the duty to recognize the goodness in my man, and the right to understand and accept that how he shows love is by doing, so let him do!!!

I have the right to enjoy being pampered by the selfsame gentleman. And I have the right to pamper myself.

I have the right to be honest, to my doctors, to my husband, to my friends and to myself. In fact, if I want to obtain any sense of well being I have the duty to be honest.

I have the right to not spend the day on MDJunction, co-equally I have the right to spend the whole day on MDJ.

I have the right to love whom I will, but the duty to be fair and considerate and kind to all.

Thank you, Irish Angel. It was a good solidifying exercise.

Natalia

gentle hugs and a peck on the cheek,
Natty


I am an RN with a current license since 1984....sheesh that's a long time....but that doesn't mean I am a DOCTOR
I dispense advice freely but you should take it with a grain of salt and do your homework and check with your doctor.
He gets paid more so he must know more. Right?

I am truly sorry your are reading my post, because it means you are here at MD Junction instead of out skydiving or deep sea treasure hunting or climbing Mount Kilimanjaro.......

Empyema-
Fibeomyalgia
Hashimoto's
IBS=if you have to ask you don't want to know
severe osteo arthritis, spine/neck
DJD hips r knee some fingers
hypoglycemia, which is every bit annoying as hyper
otherwise not so serious if you pay attention
too many meds to count but for our purposes here:
Lyrica is back Yay!
Cymbalta
pain meds

10/22/2010 04:37 AM  Top
Clarita
Clarita
 
Posts: 10829
Group Leader

This will be a popular post, rightly so! Truly happy that Irish Angel started this fabulous topic with us. Love the Survivor Codes Of Ethics stated by Natty and Davesprettylady, too!

Massive extra gentle amazing(mega) lovely hugs, love ClaritaSmilexooxooxooxSilly h4


10/22/2010 04:51 PM  Top
ASO1979able
ASO1979able
 
Posts: 6985
VIP Member
I'm an Advocate

I have the right to be loved and to love others,

I have the right to say no to things that I do not want to do,

I have the right to be respected

I have the right to admit to my feelings and to share them with others who love me

I am not a professional, any and all advice that I give is based solely on personal experiences and is not intended to take the place of a medical or mental health professional.
My diagnosis:
Bipolar I Extreme rapid cycling, General Anxiety disorder, Social anxiety disorder, PTSD, Fibromyalgia
My meds:
Equetro 800mg
Klonopin 1mg as needed for anxiety
Celexa 40mg
Atarax
Lyrica 100mg x 3 a day

10/25/2010 01:31 AM  Top
Clarita
Clarita
 
Posts: 10829
Group Leader

ASO1979able- Fantastic, loved reading your surivor code of ethics.

Just thought would share this really cool link with you about authentic power taken from Oprah Winfrey's website- hope it will touch or bless some of you here- it is about being a true survivorSmile!

http://www.oprah.com/spirit/How-to-Get-Your-Power-Back/2

Massive gentle hugs, love Clarita xooxooxoox h4


10/29/2010 02:03 AM  Top
Clarita
Clarita
 
Posts: 10829
Group Leader

This post is so good have put a sticky on it so it stays here for always Smile!!

Gentle hugs, love ClaritaSmile


12/03/2010 03:38 AM  Top
Clarita
Clarita
 
Posts: 10829
Group Leader

I have the right to take time out from here so can heal properly as in one mighty fibro flare right now- need to rest much right now as body is very bruised plus in high pains!

Am away from Devon whilst hubby is working many many many miles away in London- parents have been taking care of me yet as from today milko( mum in law kindness only) is taking over the baton until hubby returns. Both houses are not as warm as ours in Devon so sitting at a desk as a block of ice whilst typing is not a good idea for my delicate health.

If am not around here much until return to Devon then you will understand why am not around as need to be own best friend for a little while. Extra tough whilst being away from home as well as from hubby Chris- takes all my might to hold on tightly. Missing my best friend massively!!

This group is in safe plus very good hands anyway whilst take a mini vacation from here- for Natalia and John Co Leaders with me- your GL's will take excellent care of you all as well as the group, truly!!

Hope many more will post their Survivor Code Of Ethics here, too!

Take excellent care of yourselves plus each other. (i) Angels plus earth angels sublimely bless you(i)with loving kindness,random acts of kindness, serendipitous moments, Eureka moments, comfort, healing, easing up of pains, courage, guidance plus an abundance of humour/humor medicine- may all this be fabulously so for you each- may it be so!

Giant gentle hugs to you all, love ClaritaSmile


12/03/2010 07:20 AM  Top
john645
john645
 
Posts: 1510
Senior Member

To go shopping or do any activity that keeps me out for more than few minutes I have to use my wheel chair. Most stores are not accessible, and I see the looks on peoples faces and the voices of the people and the children that learn from example so:

I HAVE THE RIGHT TO EXIST. (sorry for screaming)

My money is as good as anyone else's, I should have the right to spend it where I want.

I have the right to receive the respect that I give.

I have the right to set my own limits as to how much I can do.

John

The big guy, John.

Have a long cry, say a short prayer, move on with life.

Sanity calms, but madness is more interesting.
- John Russell

I am not a Doctor. The advice I give is only from personal experience and reasearch. It is only my personal opinion.
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