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12/09/2007 12:51
nicole224
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My name is Nicole and I am 22 years old. I just found out that I have PCOS and I am not dealing well with it. Does any one have any advis for me.
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12/10/2007 15:58
pcosinct
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I replied to your diary - I think it's waiting approval from admin.

Basically, apply anything you read about diabetes type 2 to your daily living. Look for naturals - such as cinnemon, almonds, saw palmeto, etc.

My website has more information. http://pcos.itgo.com (PCOS Info Center)

Angi Ingalls; PCOS in ConnecTion

1983 Dx Spina Bifida Occulta, Double collective system, Liver issues

1985 Dx PCOS; 2006 Partial Thyroidectomy

http://pcos.itgo.com (PCOS Info Center)

http://pcosinct.999.org (Public PCOS Forums)

http://pcos.insulitelabs.com/blog/index.php (Consultant and Articles)

http://www.pcosupport.org

http://diabetes.webmd.com

http://care.diabetesjournals.org

http://diabetes.org

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12/11/2007 08:25
BevS
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It was a shock to us when Becca was diagnosed too... she's gotten used to the idea and has been working hard at losing weight. Angi gave great advice... if you treat it like type 2 diabetes, it will really help you a lot!

What symptoms did you have to make you get the diagnosis?

Bev



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12/16/2007 08:13
pcosinct
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Make sure Becca is snacking constantly, every 1.5 to 2 hours. It will help keep her metabolism running and decrease cravings. If a road block would be her school, they can not legally stop her from maintaining her diabetic lifestyle. I have a 16yr old in my support group that this has become a problem. After talking things over with the school nurse and principal, it is no longer an issue. She keeps nuts, sugarfree foods (although because of the quantity as it can increase diahrrea) and fruits in her bag. She is allowed to eat during class and this has been explained to the students in her classes. She didnt mind as it opened the door to conversation on the topic. Her teachers explained it as 'prediabetes' not PCOS as to not add too much personal detail about her life. She is able to discuss it with others if she chooses. Its a great way to open the door to PCOS educaiton.

Angi Ingalls; PCOS in ConnecTion

pcosinct@yahoo.com

1983 Dx Spina Bifida Occulta, Double collective system, Liver issues; 1985 Dx PCOS; 2006 Partial Thyroidectomy

http://pcos.itgo.com and http://pcosinct.999.org

http://pcos.insulitelabs.com/blog/index.php

http://www.pcosupport.org

http://diabetes.webmd.com

http://care.diabetesjournals.org

http://diabetes.org

Post edited by: pcosinct, at: 12/16/2007 10:15

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12/16/2007 09:48
BevS
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Thanks Angi... but I think she's doing pretty good with it right now. I will keep it in mind though in case she has any problems...

The school has been wonderful with all of her previous health issues, so I'm sure they'd be fine with it if she did need to eat during class.

Bev

Post edited by: BevS, at: 12/16/2007 11:49

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12/16/2007 11:14
pcosinct
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Eating consistantly is important regardless of her current condition. Its vital to keep the metabolism running consistantly and the only way to do that is to eat small portions every 1 1/2 hours to two hours, even if its just a glass of milk. At first, she may need to force herself into and eventually her body will demand it. This is important to keeping worsening symptoms and side affects at bay.
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12/16/2007 11:35
BevS
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Okay, so if she ate a good breakfast, then had a fruit snack around 10, then had lunch at 12, she should eat another snack mid afternoon before coming home from school and eat another snack before dinner?

I guess I didn't think of her eating so often since she's not having problems with being hungry during the day... her appetite has decreased since she started on Metformin.

Bev



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12/16/2007 15:17
pcosinct
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The schedule isn't about hunger, it's about metabolism and endocrine response. Her meals shouldn't be the size of a non-pre-diabetic either, they should be a smaller portion. I often tell others to eat the portion size of a 10 year old for meals and a 5 year old for snacks.

Breakfast; for example, might be a fruit or two or maybe a bowl of oatmeal and milk. It definately should not be a bowl of oatmeal, toast, milk and fruit.

Let's say she eats breakfast at 7, she should eat something else around 8:30 to 9. Her lunch would be around 11 which for me also take place around 11 because thats when my body asks for it. Since her lunch times are not controllable, she needs to work out her eating schedule to accomodate lunch. For instance, eating breakfast twice. Eat half before getting ready then the rest before she leaves for school or waiting to eat breakfast on her way to school. It should be structured in away that can accomdate school but know that once you structurize it, it will then take a mind of its own. After a while, she will no longer need to force herself to want to eat, her body will trigger to her planned-schedule on it's own. I would even suggest setting her cell alarm (assuming she has one) to remind her to eat. I also had to do this because I would get so caught up in my day, I would forget to eat.

Now heres the reasoning behind all of this. Let's think of a car's engine for comparison. If you only eat a few times a day your body slows down after a little while. Then, when you feed you speed that metabolism up again and after awhile it slows again. Eating is much like turning a car off and on. The heat from the car left over after you shut it off would be the metabolism, eventually the heat is gone and it settles. When you eat more often, you don't give the car enough time to settle, thus the metabolism keeps running which helps to burn fat and keep the body functioning.

The other benefit to consistantly eating is you reduce insulin spiking. Instead of the insulin yo-yoing, you keep it consistantly mellow - provided you are watching the types of foods you eat too.

I came across your other posts about your daughter and thought I would address it here since I am not a member to those groups.

Migraines: Headaches and migraines are very common in prediabetics and diabetics. They are a typically a sign that the insulin is off. They usually occur during two events, insulin too low or insulin too high. Another event would be detoxing (when we change our lifestyle from carbs there is a period of time that migraines are the worst - craving sugar).

They could also be a sign of an allergy too. For instance, I am allergic to latex and soy. Soy is in everything these days so it's difficult to find foods without it but when my soy intake is lessened, my mood, health and resulting illnesses are much better. You will be amazed at what food allergies can do for a person.

My suggestion is to make a diary of what she eats, when and how much. Then mark down at what time she has her migraines. See if they are in connection with the food times shes been eating. Check ingrediants too to see what the allergy could be. Try to make more natural uncommercialized foods in her diet to see if things improve. If it's insulin related, and the migraine is about 20 minutes after eating, she probably ate too many carbs. If the migraine is about 2-4 hours after she ate, her body is in need of food.

Her spine: Did you know that spinal damage can increase and some scientists even say cause diabetes? This is because of the nerves and fluids in the spine, damage can trigger hormonal changes. I myself was born with Spina Bifida Occulta and Sciatica. I would suggest an MRI on her spine, if you haven't already. The information might be really useful. I also suggest no message therapist but instead a physical therapist. The spine is too fragile in my opinion for someone who is not medically inclined to work with. A message therapist does not have the full capability to work with many issues. A physical therapist does, and they also perform massage therapy. Its like comparing a family doctor to a specialist. A family doctor knows a little bit about everything but the specialist knows a lot more about the particular issue. A massage therapist could actually hurt her more because they are not as educated on medical issues as a physical therapist is. I myself go to a PT a couple of times a year.

Lastly, I suggest she get a yoga ball for the house. She can play on it, workout on it or even just sit or lay on it while watching tv or doing homework. I sit on one at home and at work. It has been a wonderful asset to my overall being as well theraputic for my spine.

Post edited by: pcosinct, at: 12/16/2007 17:29

Post edited by: pcosinct, at: 12/16/2007 17:30

Post edited by: pcosinct, at: 12/16/2007 17:36

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12/16/2007 19:17
nicole224
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Thank you all for all of this info. I have been really watching what I eat and when I eat it. Finding out that I have PCOS has explained a lot. The symptoms that I have are the wight gain, lack of a period, migraines, and acne.

I have gained about 50lbs in the past year and a half. I have joined a gym and cutting out all the sugar. Putting on this wight has been really hard. I have always been active and in shape, but now I am always tried and not wanting to do anything.

My period, well I am not really sure the last time I had one of those. At frist I thought it was strss because I was working at a high stress job. My Doc did give me some pills about 5mos ago to cause me to have a period but it has been almost 10mos since I had one on my own.

I can not be pill because it casues me to have migraines. I was having one 2 or 3 times a week, but now that I am off I only have one onces or twice a month.

I have also had blood work showing very high levels of testosterone. There is also 3 of my family members that are diabetic.

I think the hardest part of all this it no ones is doing anything about. I went and had my blood work done and then about a week later I get a phone call telling my that I have PCOS. And that they want to see me in 6 months. I called them back and told them that I want to come in a speak to someone and when I went in all I got was "there is noting we can do" "when you are ready to have children we can help you because it is going to be very had for you do it on your own" There has to be someing someone can do for me. Right now I feel very alone. Everything that I know about PCOS is what I have found on the internet and who know how much of that it true.

Post edited by: nicole224, at: 12/16/2007 21:21

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12/16/2007 20:05
BevS
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Woah, Nicole... time to find a new doctor! When they say they can't help you right now, they are wrong! That is inexcusable....

Angi... the migraines are not related to her PCOS... Thanks for all the info, but I totally believe it is NDPH, which is an extremely rare condition. It's not just a migraine that she gets when she eats the wrong foods. This is a headache that she has every day of her life that occasionally turns into a bad headache (what others call a migraine). She knows what her triggers are for the bad ones; not enough sleep, stress and loud noises. We have tried taking food away, allergy testing, all kinds of things in order to properly diagnose her and after about 1 1/2 years, we finally know what it is. Unfortunately nothing helps it... she's just in continuous pain....

Thanks for the info on the massage therapist. We talked with her pediatrician and he is the one that recommended this particular massage therapist instead of a physical therapist. She had an MRI on her spine, abdominal, pelvis, and pretty much everything from her chest down (and her head too because of the head pain) when they found she had bladder cancer last November. She's been through pretty much any testing you can think of! I can't even remember it all, but I do have it all written down and keep a record of everything that has happened to her....

Bev

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