|
|
|
|
panchan14 Posts: 372
Senior Member
|
Hello, everyone! I'm Erin, and I was diagnosed with PCOS when I was around 16. I'm now 23, and still fighting this horrible syndrome. I've been through the mill with this syndrome, according to my doctors, I'm like a textbook case of PCOS. I've had all of the really nasty symptoms, the hair (thinning and growing), the acne (recently), the weight, the skin tags, the patches, the irregular periods, and the cysts. I'm currently on a very long journey towards finding out how truly sick I am, though. I have to go meet with my Gyno to check for whether or not I have endometriosis (my periods these last few times have been nearly debilitating, they've been so painful), and now that I've also been diagnosed with Systemic Lupus and Rhumatoid Arthritis, I have to go to a neurologist to make sure it hasn't affected my brain and nervous system. I think right now the hardest blow for me is that my Rheumatologist told me that now with these diagnoses together, it's not only near impossible for me to have children, it could also be fatal. I've wanted to be a mommy for so long, and now most of my options have been taken away, and since I'm not married, I won't be able to adopt unless I have a husband who is healthy enough to take care of kids with me. I've been feeling really overwhelmed these last couple of weeks, but I would love to meet a few more cysters to chat, cry, and laugh with.  "And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perserverance, perserverance, character, and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us." Romans 5:2-5
|
|
Reply |
|
|
|
newrsd Posts: 1076
Senior Member
|
wow. i am sorry to hear about all you are going through. but dont ever give up hope. i have been told that i would become totally handicapped and depdendent on oxygen the rest of my life and now I am walking around (almost independently) and breathing on my own. |
|
|
|
|
|
PurpleFlower21 Posts: 401
Member
|
Panchan I know how you feel I was diagnosed when I was 15. I had one Doctor who said " You will not be able to ever have children". Now what doctor in their right mind would tell a 15 to 16 year old that! I also have IBS and other things. Hang in there its gonna be alright. I suffer from PCOS-PolyCysitic Ovarian syndrom, Diabetes type two, IBS |
|
|
|
|
|
panchan14 Posts: 372
Senior Member
|
Thank you, ladies, for the encouraging words!  Hopefully they'll figure out how to help us ladies out! Purpleflower, I had my ultrasound tech tell me that at 16, since my uterus was abnormally small. They just don't have sensitivities anymore, do they? "And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perserverance, perserverance, character, and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us." Romans 5:2-5 |
|
|
|
|
|
teetazasteeler Posts: 471
VIP Member
|
welcome bless all.www.myspace.com/teetazsteeler my personal profile.www.myspace.com/tptp1313 my musician profile. |
|
|
|
|
|
PurpleFlower21 Posts: 401
Member
|
no they dont. I remember the last ultrasound I had. I laugh now but was really upset by the remarks. The lady at the front desk as I was leaving asked, "So, is it a Boy or a girl?" I was like "Neither I am not pregnant!!!" I had a boyfriend at the time but we were not sexually active and I wont be till I am married! but it was funny in a way. and I love the verse you wrote at the bottom of the thing. Romans 5:2-5 it goes with James 1:2-4 I suffer from PCOS-PolyCysitic Ovarian syndrom, Diabetes type two, IBS |
|
|
|
|
|
emma1980 Posts: 691
Senior Member
|
Welcome to the group I hope you find everything you are looking for. I have endometriosis too, so i know i'll have more difficulty getting pregnant but im actively trying  lol "When things go wrong and they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile but you have to sigh,
When care is pressing you down a bit
Rest if you must, but dont you quit.
Success is failure turned inside out,
The silver tint of the clouds of doubt,
And you can never tell how close you are,
It may be near when it seems afar.
So, stick to the fight when you're hardest hit,
Its when things go wrong when you mustn't quit" |
|
|
|
|
|
Starbright81sjv Posts: 152
Member
|
People in the medical profession, seem to be losing their humanity! Not all but some! Im sorry you guys have been treated that way! I have had similar experiences, especially when I was younger and had to go to a low income health clinic, one doc, would tell me just to get over myself and quit pretending. I even had a doc recently (not my normal one) tell me the only reason I was sick was cause of my gigantic stomach! Well thank you very much, that totally explained a sinus infection. I have learned over the years to just let their comments roll of my back! We have enough to worry about without rude and judgemental comments! Cora
I am not a medical doctor and any advice I give should not be taken as such! Proper medical care is always advised! |
|
|
|
|
|
PurpleFlower21 Posts: 401
Member
|
Im actually gonna be in the medical field, gonna be an ultrasound tech! I suffer from PCOS-PolyCysitic Ovarian syndrom, Diabetes type two, IBS |
|
|
|
|
|
panchan14 Posts: 372
Senior Member
|
Starbright, my favorite game is having them tell me that all my problems are because I'm fat. "Oh, your fingers are swollen? Well, lose some weight!" I've lost almost 100lbs in the last two years, and I think they need to start listening a little more. Purpleflower, I wish you the best of luck, and will keep you in my prayers! I know it's hard to keep your humanity in the medical field because you see so many people, but I think if you have a health problem, it makes you more empathetic. "And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perserverance, perserverance, character, and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us." Romans 5:2-5 |
|
Reply |
|
"Before i found MDJ i was in the deepest darkest part of my life after my abduction. I wanted to feel safe. I wanted that sense of being a normal person.Finding MDJ and the people with in it has steered me down the correct path into the light of hope. The feeling of hope that i was not alone,the feeling of hope of understanding,and the feeling of hope to move on. I never give up hope." (1magicman)
