My husband has PKD. We've known for 9 years. He's been brave, strong, and diligent in taking care of himself. His nephrologist says he's his STAR patient.

Last month, his creatine suddenly shot from 4.9 to 7.9 within 2 weeks. Even though hubby insisted he felt fine, the doc said it was time for dialysis.

That was on a Monday. On Thursday, a PD catheter was placed. Last week when we went to have his line flushed, hubby had a rare reaction. They're going to try again this Thursday. I hope to God that his anatomy will be able to handle PD. He's an active man, an athlete, and he doesn't want hemo.

I'm here, because there are no renal support groups of any kind in our city. I want to be able to get information for my husband, moral support and information for myself, and to encourage others who have PKD with my husband's story. He was told nine years ago that a transplant would be needed, yet he was healthy enough to not qualify for a transplant until last year. He is blessed that PKD is his ONLY health problem. He's on the transplant list, but still looking at a 5yr wait for a cadaver organ. All of our family has been tested. Only his sister matched, but it was discovered during the testing that she's diabetic, so she was ruled out.

I hope to get to know you all better, soon.