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Lunatoon Posts: 47
Member
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Hi Yoshitoky, It is always a shock to find out we have these tumors. There is good news and bad, the good news is that the tumors are generally benign and won't kill us and the bad news is that they usually have to come out, which is not to say the surgery is terrible, just not someting anyone looks forward to. You are young and your tumor may be small enough to not require surgery or it may be treated with meds first. The other doctor you need to see is probably an endocrinologist, they will do various blood tests to see if the tumor is a functioning (prolactimoma) or non functioning. They will tell you everything you need to know about the tumor size and what type it is after you get the blood work done. Try not to stress too much, I know, easier said then done, there is lots of information here and on the internet to keep you busy,  . I think we all go into panic mode immediatly and then after finding out all we can, we tend to get calmer. Read all the posts here you want, everybody has had their moments, you're not alone, and don't worry about posting your fears or questions. Keep us updated on how you are doing and what the docs say. I am sorry you have to deal with this, it's not fun but it's not the end of the world either. If you do have to have surgery, generally, 2 months is usually the time it takes to get yourself back to a normal life. Just be proactive, find out about your neurosurgeon, has he (she) done many of these types of tumors, is there a center near you that specializes in pituitary tumors. It helps your peace of mind to know everything you can and also helps you understand just what the heck the doctos are talking about. make a list of questions to take with you too. I hope it turns out to be so small, you need only keep an eye on it. We'll be waiting to hear with you! Margaret |
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