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03/04/2011 09:04 AM

Just Diagnosed.......

bucfanrod
bucfanrodPosts: 32
New Member

Hello,

I have just been diagnosed with a 15mm pituitary Tumor by my GP. I am 44 yrs old,usually healthy, and work out quite often until my pain and weakness down my arm which started in January. I have also lost about 30 lbs since then (unusual for me). Anyway, because of the pain and tingling down my arm and he sent me for an MRI on my neck and just to rule anything else out he had them do an MRI of my brain also. When we received the results he was surprised with the results and informed me I had a 15mm pituitary tumor. Needless to say i was surprised, scared and not sure what is next. I do have an appointment with the neurosurgeon on Sunday to I guess discuss the next steps. From reading all these posts it looks as though they will need to do blood test to find out what kind of a pituitary tumor it is.On top of the pituitary tumor the news from my doctor was that I have degenerative disc disease in my neck, talk about adding fuel..... Needless to say my family is scared especially my children and wife. All they hear is brain tumor and they think they are going to lose their father. I have researched quite a bit on the internet since the news and have found out that they can remove it with very very high success rates. Any advice on how to comfort my family would be appreciated.

Rod

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03/04/2011 07:47 PM
JordynsGigi
JordynsGigi  
Posts: 786
Senior Member

Hi Rod,

Since you have done some research, you know pit tumours are 99% benign. That bit of information was very welcome when I began my research.

It is very scary for family members.... like you said.. brain tumour does kinda freak out most people.

Although, you may be relieved to read of the high success rates, I doubt its as much comfort for your family. They dont want you to have a tumour, and they dont want you to have surgery. They are scared.

Once I felt settled with my diagnosis, I began to use humour, which is something we do in my family. Of course, they were shocked, and upset that I would joke about it, but I think it did help lessen some of the seriousness of the situation.

But honestly, they are going to be scared, and worry, until youre in the recovery room.

Good luck with your appt. and keep us posted.


03/06/2011 01:12 PM
ladynnred
Posts: 18
New Member

I was very scared also. Make sure you have a very good Dr. That will ease your fear and also your families fear. Depending on what area you live in, there are so many neuro pituitary specialist. I was diagnosed the middle of November and had my surgery the 10th of Dec in NY. I just wanted to get it over with. I spend all my free time reading about others that went and/or going through the same thing. A good Dr. will make you and the family understand the procedure and help assure everyone that you will be fine. I wish you the very best.

Sandy


03/06/2011 02:59 PM
GregR
 
Posts: 26
Member

Hi

Im a 10+ year survivor of a 6+cm macro tumor. I don't mean to play down what you are going through. At any size, this is some scary stuff. The good news is that you are going to come through this OK. It sounds like it got caught pretty early.

I find honesty is the best way to handle it with the family, just make it a little at a time, not all at once. Sometimes, I think its much worse to care about someone going through this , than having to actually go through it yourself, since you are being kept busy.

The most important thing that you can tell the ones that love you is ask them to be there in the post-surgery phase. Thats when they can be the most help.

Best wishes.


03/06/2011 04:30 PM
Lunatoon
 
Posts: 47
Member

Hi Rod,

You came to the right place! All of here are in some stage of pit tumor recovery. It's not a happy thought but as Brenda said 99% are benign so there is no cancer. If you have to have a brain tumor I suppose this is a better one to have. Family is a very big concern, they want to help you but don't know how. The best thing you can do is assure them that it's something the doctors can remove. let them read some of the posts here. It does help to have all the information you can.

Getting past the surgery is a milestone. Once that is out of the way, you and your family can concentrate on getting you back on your feet. I had a bit of a rough time after surgery, but that turned out to be a medication problem, thank goodness. It's scary, it's unerving sometimes, it's stressful, but once you get some distance from the surgery itself, all you will want to do is get back to your life. I am six weeks post op and feeling like my old self again. I'm glad it's over.

Keep us posted on how you are doing. Don't be afraid to ask questions. I hope all goes well and we will keep you in our prayers!

Margaret


03/08/2011 05:50 PM
bucfanrod
bucfanrodPosts: 32
New Member

Thank you all for your kind words, they have definitely been a big help and a blessing.

Well, I saw the Neurosurgeon on Sunday. He ordered a battery of blood tests I guess to find out what kind of a pituitary tumor it is. I went for the eye exam yesterday and my peripheral vision is doing okay. I guess I need to wait for the blood tests to come back. I have been having ringing in my ears and headaches. Have any of you had the ringing in the ears?

The doctor seemed inclined to maybe wait 6 months and do another MRI then.......hmmmm not sure how I feel about that knowing I have a tumor in my head. What have your experiences been?

Rod


03/12/2011 05:38 PM
bucfanrod
bucfanrodPosts: 32
New Member

OK, I found the down low from my neurosurgeon. Apparently my neck is worse off than I thought it was and performing the pituitary tumor removal would be too high a risk considering the condition my neck is in, sooo he will have to fuse my neck together C1 through C6 to avoid possible paralysis first. I am scheduled to have that surgery done April 19th. After the neck is healed he will remove the tumor. I am not sure which surgery I am more concerned about, the fusion or the tumor removal. Wow I have a lot to contemplate over this next 6 months because the neck surgery will take about 6 months to heal. Any words of wisdom and comfort will be greatly appreciated.

Post edited by: bucfanrod, at: 03/12/2011 05:39 PM


03/22/2011 11:16 AM
JordynsGigi
JordynsGigi  
Posts: 786
Senior Member

Hi Rod,

Gesshh.. I cant really think of any words of wisdom. What a double whammy youre dealing with!

How are you doing now.. any updates??


03/28/2011 11:49 AM
bucfanrod
bucfanrodPosts: 32
New Member

Just started having major pains in my neck last week.... accompanied with headaches. my right eye has been having shooting pains that feel like its in the back of the eye. I am not sure whats causing what.... I have a pre-op appointment for my back surgery on Friday. have any of you had the shooting pains from behind the right eye or major redness and irritation in the eye? I am getting through one day at a time right now...

04/04/2011 08:06 PM
bucfanrod
bucfanrodPosts: 32
New Member

OK, I found out more information...before any tumor removal can be done my herniated disks in my neck will need to be fixed first. First some results form my eye exam and blood work. My eye exam showed very very little deterioration on my right side peripheral vision. My blood work all came back normal so he said my tumor is a non functioning one. The official size of the tumor is 1.1cm x 1.6cm x 1.8 cm . He showed me the angle that the neck would have to be tilted to perform the tumor removal and I know right now I can not bend my neck back like that without some pretty tough pain. I have DDD in C5-C6 which i have had since birth, so he will have to fuse C4-C5 and C6-C7. This procedure is called an anterior cervical discectomy and fusion. He will put me in touch with an endocrinologist after my neck surgery as well as an ear, nose and throat specialist. The recovery from the surgery will be from 2weeks to 6 weeks. so i will more than likely i will be having the tumor removal about 8 weeks after the neck surgery.

I have done some research on this neurosurgeon and he is the best in our area.

Rod

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