MDJunction - People Helping People
 

Why wear a ribbon?

 
"Nathaniel, my partner, died of an accidental overdose during a manic episode. He..." (CutieK)

MDJunction to me

jpcrps"When I found MD Junction, I was in the beginning stages of RSD/CRPS. I was scared, lacked knowledge about the condition, and felt very alone.

MD Junction changed all of that for me. I found friendship and terrific information from people who had first-hand knowledge of this syndrome. It was and still is a big part of my life.

MDJ was my first step on the journey of grief; from denial to acceptance. I am now inspired to help others by sharing this amazing site and sharing my own experiences. I am very impressed that one forum site can provide hope and inspiration to people suffering from so many different conditions. I am proud to be a part of this community.
~ Jenny
" (jpcrps)

more testimonials
Pituitary Tumor Support Group
A community of patients, family members and friends dedicated to dealing with Pituitary Tumor, together.
Join This Group
Group Home   Forums   Articles   Members (512)   Diaries   Videos   Leaders   Guidelines
Pituitary Tumor Group RSS Feed
Pituitary Tumor ForumsGeneral & SupportNo surgery required???
08/03/2011 05:53 AM
Eileen24
 
Posts: 26
New Member

Well I have l my results and have no hormonal damage. Therefore no treatment - which is good - right????? But I still have a tumour that burst and it's 10mm - does anyone else think I should still have it removed? I'm confused! I thought that it should be removed!! Any info would be appreciated! Thanks . Eileen x
Reply

08/04/2011 08:32 PM  Top
Rhub
Rhub
 
Posts: 161
Member

Is it causing any symptoms? I was told if it wasn't causing you problems, it did not have to be removed. for my peace of my I would want it removed, but I guess that is not a medical reason.
Rebecca

Previous discussions I participated in:
Overcoming my fear
Some results
Cortisol

08/06/2011 08:56 PM  Top
sacredriver
Posts: 127
Member

Hi Eileen,

If it isn't pressing on the optic nerve and there are no other issues, it is often left alone and watched carefully. They can watch and see what happens overtime, it may never grow or change and if it does then you can decide what to do. For now, I would wait and see what happens, these are usually very slow growing and slow changing tumors. ANd you are right, it is good news,,so celebrate your news and enjoy it! I am happy for you!

Terry


08/08/2011 11:27 AM  Top
JordynsGigi
JordynsGigi
 
Posts: 786
Senior Member

That is wonderful news Eileen!!!!

Like Terry said, just make sure its closely monitored with MRIs.

Brenda :)

09/14/2011 12:26 AM  Top
Eileen24
 
Posts: 26
New Member

Thank you my friends. I suppose you are right. It hadn't damaged any hormone etc and as the doctor put it - I have "dodged more bullets than John Wayne ". The tumour is mildly pressing on the optic nerve but hasn't affected my vision yet. But I am still suffering from headaches every day. Is this a general side effect?

Thank you all for the hood wishes xx eils


09/14/2011 01:47 AM  Top
2bfree
 
Posts: 2
New Member

i think it "normal " to have the headaches daily as i also suffer daily with headaches and so do alot of pituitary tumor suffers.good luck with the surgery keep u in my prays

Previous discussions I participated in:
weight gain

09/14/2011 07:21 AM  Top
Rhub
Rhub
 
Posts: 161
Member

I also had daily headaches. However, before my surgery, the surgeon told me there was only a 20-40% chance that my headaches would disappear after the surgery. My pt was also pressing on my optic nerve, but I had vision issues. It has only been 2.5 weeks, but we have hope that the headaches will be gone. I have woken up twice without a headache, and that hasn't happened in two years.

Have you talked to a neurosurgeon or just a neurologist?

If you haven't seen a surgeon, you should ask for a referal, for a second opinion. Both my surgeon and neurologist said it was the surgeon that was in the best position to determine if removing the pt will be helpful to you. In my case the fact that it was touching the optic nerve was cause for concern. Even if you don't have vision issues now, they will most likely come, and that is the cause for concern. Everyone has the right to a second opinion, so don't be afraid to askSmile.

Rebecca

Previous discussions I participated in:
Overcoming my fear
Some results
Cortisol
Reply

Share this discussion with your friends:
Members who viewed this page also read:

Pituitary TumorPituitary Tumor ForumsGeneral & SupportNo surgery required???

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved