Pituitary Tumor Support Group

Hi all,

This seemed not so stressful weeks ago when MRI results came back, and Endo doc said no meds, go for surgery, and referred me - thank goodness - to one of the best in Nashville. Met with doc, all smiles & such, but now panicking about possible outcomes. My vision has been largely unaffected to now...hoping it stays that way. Wife & I going on cruise in 2 months in Alaska, would also like to keep 'our date'. Seems the more I've been reading, the more anxious I'm getting. In early 60's, always been active, but my tip off was huge fatigue...Feel like I should cancel surgery, but that would be wimpy & accomplish nothing. Is this normal feeling at this time?

Thanks!

I think it's completely normal to be anxious. We have 2 weeks until my husband's surgery. I'm nervous, but very excited. The only way to get past something is to go through it. I feel like we can't finish the race until we jump over the hurdle of this surgery.

The timing seems great in order for you to recover in time for your trip. If everything goes well, 8 weeks should be perfect for a well deserved, relaxing vacation.

Please stop in after your surgery and let us know how you are doing.

Best of luck!

It is normal to be experiencing these feelings.. who wants to have brain surgery? LOL

I found it beneficial to go through the panicky feelings, play out all the 'what ifs' with my imagination, but always came back to the thought that everything is going to be fine. I made that my mantra. Everything is going to be fine.

I was nervous up till 2 days before surgery. That morning I woke up, feeling all warm and fuzzy, knowing its going to be fine. I was surprised, feeling so calm, and very thankful! The morning of surgery, I really felt like I was wrapped in a big warm blanket, I felt protected, and knew deep down, that I was going to be ok. My family was there to comfort me, but it was just the reverse..I was convincing them, that I would be just fine.

IMO.. Start telling yourself you are going to be fine.. all the time.

And soon, your mind, and heart will believe it.

When is your surgery?

Thanks...I know in a few weeks I'll be glad this was done. It's not like a wrist surgery, though, where you can point & touch the affected part...it's eerie in that sense. But I will definitely keep posts coming, hopefully to help someone else. Posts in this recently discovered group have been of enormous benefit to me at this stage...

OH, forgot....surgery is the 13th.....on the 12th I'm seeing an ophthalmologist who is going to 'map my vision', I guess. Sounds less than fun, but more than bad, and I'm guessing something my neurosurgeon will need the next day. My peripheral vision is basically intact, don't see double, and am hoping to keep things that way. I play music at the church, I'm a gardener, a hiker, and love books, and my family's faces....which is all part of the nervousness....

I know what you mean Regarding support and info from this group. Thoughts and prayers with you. I will definately remember you on 12/13th so good luck and god bless x

2 days to go....was hoping for a 'calm' feeling today, but just the reverse. I've had all manner of prayers & good wishes given, but oddly feel very much alone, and anxious off the map. On the one hand, I'd like to cancel the whole thing, on the other, I know I can't. I have a great surgeon, incredible family, caring church family...you'd think I'd be comforted to the point of no stress....not so much.....

My goal, my hope, my prayer is to come through this fantastically, and then post what a big whiner I was, and for no one else to feel like I did....

Wish me luck: tomorrow is the 'mapping of the optic nerve', and then Wednesday it's "showtime"....

Pete

Pete, I'll be thinking about you on Wednesday. It's a huge day and I hope one that will be the start of a wonderful, healthy new chapter of your life.

I'm so sorry about your anxiety, but I understand it more than you know. I've entered the "meltdown stage" as I like to call it. I can't concentrate at work and I'm physically sick to my stomach. Just yesterday my boss asked me why I was worried...."What could go wrong"? Really???? I thought it was insensitive, but I try to realize that people mean well. So, you are not alone, even though you feel like it.

Not only do you have your family, friends and church, but you have a group of peers on this site who understand exactly what you are going through. In fact, you also have a job to do. You are going to come back here and tell me how wonderfully things went and make me feel better about my husband's surgery next week.

You can do this!

Hi,

Got back from the opthomologist, and went through the various tests to see if there has been any damage to the optic nerve, peripheral vision,etc. It was good news today. While he couldn't guarantee my vision post-surgery, he did say it really lessend the chances of a visual reaction.

Thought today I would be climbing the walls, but since getting up this morning, I've had just kind a 'peace' surrounding me. Tests are done, prayers have been offered up, and family is all around me..I can't be any more prepared.

Now, when I get "wheeled in" tomorrow, that may all change, but you'll have to wait a few days to find out how that goes. I know that finding this website has been a blessing to me; I'm hopeful that my own little surgical journey/journal will help someone in the near future...

Pete

Hi,

Got back from the opthomologist, and went through the various tests to see if there has been any damage to the optic nerve, peripheral vision,etc. It was good news today. While he couldn't guarantee my vision post-surgery, he did say it really lessend the chances of a visual reaction.

Thought today I would be climbing the walls, but since getting up this morning, I've had just kind a 'peace' surrounding me. Tests are done, prayers have been offered up, and family is all around me..I can't be any more prepared.

Now, when I get "wheeled in" tomorrow, that may all change, but you'll have to wait a few days to find out how that goes. I know that finding this website has been a blessing to me; I'm hopeful that my own little surgical journey/journal will help someone in the near future...

Pete