Pituitary Tumor Support Group

I have a recurring pituitary tumor, it is 2.2cm and it is functioning tumor.

My eyes are fine, I still have regular (really heavy) periods. Body hair seems fine. No unsual moodiness, no problems with Libido...The last time i had this back in 2006...I had no periods for 4+ months and had all signs of medipose.I had leakage from the breast constantly.

This time, I have mild headaches almost all the time, but rarly do they get really intence...biggest symptom i have is constant nausea and fatgue. I do have uncomfortable leakage from breast but not nearly as much as I did when I had this in 2006.

My Family doctor calls me a Medical Mystery because putting my blood work, symptoms,current Mri and my medical history it all does not add up. And my Endo MD feels the same. I see surgeon tommorrow...I am so not sure what to do...play up symptoms that I do have or play down everything...I am human...I don't want surgery but I don't want to prolong and make worse...there is no doubt in my mind that my quality of life has gone down since the nausea and fatigue are so intence ...I don't know. Endo is reluctant to start me on any meds till after surgery. Anyone else have similar situation??? Symptoms not adding up....confused.....

Surgery - not as bad as it sounds. I've been through both a transphenoidal removal of a +6 cm and a Gamma Knife follow-up 5 years later.

With he transphenoidal - I was out of the hospital i n3 days. I suspect that with yours it will probably be shorter. Not a lot of pain/discomfort.

Worst part will be the endo after the surgery - with me it took 3 months until they finally got the mix right and I returned to being human again.

Good Luck, I will be thinking of you. I had my first surgery in 2007 and then my second transphenoidal in 2010. People told me I just had to be "unique". Not really what I wanted to be unique about, though! Let us know what you hear from the surgeon. It is a journey we are all on, one that takes a while to figure out how to weave it into our lives. I am still working on it. Some days are better are than others. But it helps to know there are others out there who understand and that I am not alone. What you are experiencing and feeling is real. Be honest about it. Somedays my symptoms don't make any sense either, but it's about trusting our selves and our bodies and listening to what they are telling us. Hang in there. We all care!

Terry