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herro
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HI, let me help. when mass replaces pit i think they mean displaces as in moves your pit over. my was irght sided tumor displacing my pit to the left. the sella is the space around or by your pit so larger measurement would be the size of this. so an 12x12x9 would be a 12mm or a 1.2 cm., macroadenoma. no hemmorrhage is good, that's very rare but painful. supracellar is name of another space. drs will tell you that this won't cause headaches but you don't know unless you've been there. mine was touching optic chiasm. my neurosurgeon showed me my mri's and explained all the parts to me, he's so nice! i have had t4 test done too, but i would have to look it up, i hate this memory thing!!! i used to have all that just right there in my head when i needed it but now i have to "refresh" my memory! what cortisol tests are you having done?? i have done urine so many times. "don't drink that, it's not apple juice!!" my kids would say "that's so gross, don't keep your urine in the refridgerator!" |
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lynzie
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 lol! That is so funny! I kept my salivary cortisol samples in a cooler, but nobody noticed, so that's good . I did the salivary and the one where you take a pill at 11pm and have them draw blood at 8am. I just finished them today, so I don't know what the outcome will be. They want me to do the urine one, but collecting my urine for 24 hours once a week for three weeks doesn't sound like a lot of fun so I am waiting to see if it's still necesary after these two. Thank you for the info! I truly appreciate your expertise. I was actually surprised to find that it was that big, but like you said, no hemmoraging and not touching the optic chiasm is a good thing  . I started taking estroven at night in addition to the Amitriptylin and it seems to be helping to level me out emotionally, so I'm starting to feel better . Even splurged on a starbucks this morning  ! Hope everything is good there!! Have a great day !!! |
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herro
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Awww, nothing like a good cup of coffee! i make myself hazelnut coffee at home, sooo good...i never had the blood draw test but believe the pill is dexa to see if you supress. sometimes they do test in hospital only the other way around, to stimulate production. is estroven natural form of estrogen? have you tried dhea? i took amitriptylin for a couple yrs. then stopped and then took wellbrutrin while i quit smoking. i was a 2-3pack a day for about 25+yrs. i quit 4/1/2000!!
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lynzie
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Estroven is n herbal estrogen supplement. It's the first time I've tried anything like it. My Mom gave me a box, so I figured what the heck. What is wellbutren? I take the Amitriptylin to prevent the headaches, so it's a really low dose, 10mg. I guess when you take it for depression it's more like 150mg. It works for the headaches pretty well. I still get them a little bit, but not as bad or as frequent, and my energy levels go up too. I'm impressed that you were able to quit smoking after so many years! I had a lesser habit that I started when I went back to school for real estate in 2006. I took Chantix in Jan to quit and it worked for me but not my hubby, he's been smoking for almost 15 years. He slowed down, but then he stopped taking the chantix and is back to a pack a day. How did you do it? |
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herro
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my hubby smokes too, he quit once for 2 yrs. i quit before for 9 mths-hypnosis. the twice for a few mths cold turkey. welbrutrin is what drs 1st used to prescribe to help quit. works better for women.mine has been smoking for 40+ yrs. we are older then you,i am 50, he is 57. he has really high chloresterol, is very high risk for heart attack. i can't make him want to try to be healthier...last time i quit i had decided that i would quit forever. a lot of it is the power of your own mind. then a few yrs later my brother got lung cancer. he had smoked for 40+yrs and quit but not soon enuf. the damage was done...he was alcholic too but had quit drinking. he was working and living clean life, just him and his beagle sparky in his little house. he died about 6 wks after he was diagnosed. my oldest son started smoking, it breaks my heart...i can't change what i have done to my body or what my husband's done to his but son is only 24. i have had 2 ct scans, have 2 small nodules that are being watched..i have already decided if i get cancer i will not go thru rad and chemo. i will enjoy what time i have living my life, even if it means less time, it will be better time. sorry i go so longwinded on that one. it is very emotional subject for me. both of my grandfathers died of cancer. even my brothers dog died 3 mths after my brother from cancer. and then a good friend of my brothers died. i believe he wanted them to be with him. my brother died in the middle of the red sox winning the world series. he was a big fan and we had been watching all the games. even when he was too sick to watch he listened and knew every play. got to go, going to call my dad and talk about my brother.... |
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lynzie
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That must have been, and still is, a tough thing to go through. I lost my grandmother to lymphatic cancer when I was very young and my aunt is in remission after a double mastectomy, but neither of those could have been prevented. My husband has high tryglicerides that are causing high blood pressure, but i can't make him be healthy either. Every time i try, he rebels and then it's worse than it would have been if I had left him alone.The toughest loss I have suffered was my cousin. He was the same age as me and when we were 17, he got bacterial meningitis and was gone in less than a week. I still have a hard time with that. We were really close when we were little and used to write a lot. I had meningitis a few years later, but it was viral so I lived. If I inherited all the bad genes from my family members, I could have heart disease, cancer, alzheimers, stroke,and a slew of other things. Hopefully, I don't take after any of them and i will simply die of old age in my sleep at 100 yrs old. OK, that's morbid. By the way, don't ever feel bad about writing a lot, I enjoy reading it and it helps to talk about it as much as possible. It's the only way you can heal, maybe heal is the wrong word...cope is a better word, I think. You never fully heal after that kind of loss. |
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herro
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no, you just learn to go on. i never knew i could be that strong, i sat in the hospital with him every nite, fed him ice cream (he enjoyed vanilla so much, it was all he could eat), explained things to him like what is a cathiter(sp?). but i will always remember the last time i saw him, i wasn't there when he died, left to shower and check on my family. but he seemed alert all of a sudden and we looked each other in the eyes and i knew that was our goodbye. i had spent all nite with him when everyone else slept. it was so hard, i knew he was dying and that if i could "will" him to live i would have. does that make sense? but he was in so much pain, and he was afraid. but my mom and dad were with him and in the end you still look to them "to make it better". so now i am way off topic! he had tumors in his brain too. so remember that visual signs are a sign of brain tumors, he would sometimes loose part of his visual field.i have had visual field test every 6 mths (until surgery) for few yrs. i flunked my last a couple mths after surgery, but haven't gone back. i just can't deal with what that implies, in couple mths i will go have visual test again. am also going to ask for mri to make sure everything looks ok in there.
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lynzie
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We did thesame sort of thing for my Granpa when he went. We all took turns watching over him, wetting his mouth with the sponges and slowly watching him go. It was hard, but I'm glad I was there for him. He died from Alzheimers. The last day he could talk he was talking about my Grandma and how much he loved her, she was the one who died from cancer years and years before he died. It was so sweet . As far as the eyes go, once the damage is done can they do anything to fix it? glasses or something? I had a visual field test done the same day I went to see the surgeon. I passed just fine. Actually, the opthamologist was really nice and more informative than the surgeon was. Did you ever fail a test before surgery, or only after? I'm sure when you go for the mri and visual testing everything will be fine! Let me know when you do go how it turns out, k? I am supposed to be pushing for this second opinion, but I am dragging my feet. I don't even know what I want to hear anymore. Surgery? No Surgery? Oh, well . I'll get there eventually. I have a tendancy to procrastinate sometimes... |
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herro
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if you loose visual field from tumor then supposedly it will come back after surgery. i thought about surgery for a long time. i took meds hoping to shrink tumor, but they didn't work. i could have waited 1-2 yrs until tumor was pressing on optic chiasm too much but decided to just get it over with. i knew that i would have to sometime. but...looking back, i wish i had waited. i could have had a better quality of life for a couple more yrs. i thought, well, i'll have surgery and just be done with it all. boy, was i wrong!!!i had to have all these complications! i planned on being out of work 6 wks. i have been out since 6/07 and my dr keeps signing me out mth after mth. i have applied for ssdi? and just did 1st appeal. if i were you and all hormones were ok, i would watch size of tumor for awhile. unless symptoms are terrible. my neurosurgeon wouldn't guarantee me the headaches would go away. and actually they have(just had bad ones for about 4 mths after surgery), but instead i ended up w/other problems. think about it... |
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lynzie
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I will definately think it through thoroughly before i do it. I think I can wait for quite a while before i do it, depending on how fast it grows. It also depends on what happens to me as it grows. I'll just have to weigh the pros and cons. And run it by you first, too. You have been a great source of information and support ! I can't say enough how glad I am to have met you!!!!! Thanks! |
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