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Photoallergy ForumsGeneral & Supportvideo on u-tube about photoallergy
03/09/2011 08:46 PM
violett
violett
 
Posts: 3039
VIP Member
I'm an Advocate

Our search doesn't seem to bring up anything, but there are numerous videos on utube. Here are a couple I found. I didn't find any of medical importance.

http://www.youtube.com/watch?v=uC3t4KwLinA

http://www.youtube.com/watch?v=_GWiYl-fJts

Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

"Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference." anonymous

"A friend knows the song in my heart and sings it to me when my memory fails. "
~ Donna Roberts

Join me at:
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http://www.mdjunction.com/photoallergy
http://www.mdjunction.com/irritable-bowel-syndrome
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04/14/2011 03:07 AM  Top
unripping
unripping
 
Posts: 329
Member

Hi Violett, here is a video that my son made about me. It was supposed to be funny but when he edited it, it was really sad and I saw how he viewed my condition. My photo-allergy is severe. I've started plaquenil since this video was shot so I do have some sun tolerance and the burning is no longer instantaneous.

http://www.youtube.com/watch?v=4w0VPViacHk

Post edited by: unripping, at: 04/14/2011 03:07 AM


04/14/2011 06:25 PM  Top
violett
violett
 
Posts: 3039
VIP Member
I'm an Advocate

Thanks for posting the video. I can see that your photoallergy is severe and I understand. I don't have the same outfit as you, but i do buy sun-protective clothing. I wear sun pants, long-sleeved shirt, gloves, hat, and umberella. Even with all that, I must limit my time, because the heat also makes my skin red. This outfit will protect me for about half-hour to an hour, depending on how bright the sun is.

Do you mind if I post the video as a sticky topic so any newcomers can view it?

hugs, violett

Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

"Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference." anonymous

"A friend knows the song in my heart and sings it to me when my memory fails. "
~ Donna Roberts

Join me at:
http://www.mdjunction.com/arrhythmias
http://www.mdjunction.com/erythroderma
http://www.mdjunction.com/photoallergy
http://www.mdjunction.com/irritable-bowel-syndrome

04/16/2011 01:46 AM  Top
unripping
unripping
 
Posts: 329
Member

Sure. I'm not sure if the video is sit up for web sharing. you might just have to include the link to this page.
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