Peripheral Neuropathy Online Support Group

I cannot use socks on my feet because they are always hot. If I put them in a bucket of cold water, the water gets warm quickly, and ice needs to be applied to the top of my toes for relief. Water temperature at shower time is getting a little dangerous because the water feels normal for not long at all. I think it is only affecting my feet, legs, and back so far, and not my hands, and I hope it never affects my head because that area is very sensitive. My psychologist recommended that I find an online support group to talk to about this. I know I will know more on Tuesday, because see my foot doctor, who can help, and a neurologist, who can help as well. Any stories are welcomed about your experiences with this. Thanks!

Post edited by: bboberg, at: 09/09/2011 06:16 PM

Do you have a diagnosis as to what is causing your peripherial neuropathy? Like diabetes or a neuromuscular disease.

Because I have other neurological disorders, but not diabetes or neuromuscular disease, it may have caused this peripherial neuropathy. I have a seizure disorder, and hydrocephalus, with dandy-walker syndrome, but that is all. Now I have been given an oral medicine and topical medicine and soak my feet in ice cold water and air them in my ice cold bedroom without socks on or covering blankets. It does help.