MDJunction - People Helping People
 

Why wear a ribbon?

 
"I lost my father to Parkinson's and I was recently diagnosed with it. " (enzourth)

MDJunction to me

Bettyg"MDJ means a place for others with my type of illness to hang out; chronic lyme and/or co-infections/other diseases the ticks carry. 
We get NEEDED SUPPORT from those walking in our shoes, and share in EDUCATING one another. 
We are blessed to have over 700 boards in ONE location! A WIN-WIN.
" (Bettyg)

more testimonials
Penile Cancer Support Group
A community of patients, family members and friends dedicated to dealing with Penile Cancer, together.
Join This Group
Group Home   Forums   Articles   Members (50)   Diaries   Videos   Leaders   Guidelines
Penile Cancer Group RSS Feed
03/10/2012 06:42 AM
pogue
 
Posts: 38
New Member

great post mel!! cancer is bad but penile cancer is a man thing to share with his dedicated wife and family and supporters of this forum.in mother nature i trust it will not raise its evil nasty head again
Reply

04/06/2012 12:18 PM  Top
Darrell123
Posts: 26
Member

Mel,

Thank you so much! I'm sorry I didn't write you much sooner. You're looking great by the way, and congrats on losing the weight you have. I've struggled with weight loss as well, and I now it's not an easy thing to do. But you did it and did it while going through grief and loss. That's truly amazing as well as very inspirational to someone like me.

I took some time, away from the computer and away from everything really. I live in a beautiful part of the world up in the mountains and feel very blessed to be here. After the divorce and still trying to cope with the loss of my penis, I just had to get away from it all. I found the hikes and my time spent in nature to be very therapeutic.

We live in such a fast paced world and so much is geared toward sex and pleasure. I found that watching television and being on the internet were just hurting my soul. It seemed every time I turned around I was seeing a commercial for Enzyte or Viagra, if it wasn't that it was keeping yourself healthy so you could have sex. Then there were the times I myself would go online to talk with women asking them how they would view a man without a penis. Most were interested, even fascinated at what happened to me, but most of them also said they would not want any kind of serious relationship with me.

All of this, really began to depress me. I'm curious if others of you have gone through this stage? Finally, for me, I just had to turn it all off. No more polls, no more commercials, no more therapy sessions, no more ads about sex, no more listening to internet chatter of the man who had his cut off by his wife and put into the garbage disposal.

I just had to turn it all of, and tune it all out. And since I have done that, I began to truly heal. Both accepting what the surgery took from me, but also accepting my life that it's allowed me to continue living! I'm grieving the loss of my marriage and still coming to terms with that. But I believe it will come with time. For me anyway, this world was so fast paced that I began to give up. I felt worthless as a man, and like no woman would ever want me again. But, after I stepped out of that fast paced vicious cycle, I began to see what's really important in life: Living, Loving, reconnecting with people and loving them for who they are.

Ok, this was longer than I expected it to be. But, if this somehow helps anyone out there, than it was worth each word. I've accepted that my penis is gone. But it doesn't make me less of a man, nor does it make me incapable of giving love to someone who is willing to look past this. I hope I will find love again someday. For now, I'm working on the new me. I just wanted to say thanks to all of you, who have helped me take those small steps to where I am. I still have a long way to go, but I am filled with courage and hope to take another step every day. I appreciate all of you.

Darrell


04/06/2012 10:40 PM  Top
pogue
 
Posts: 38
New Member

you are one brave man much respect to you superman!!!

Previous discussions I participated in:
Penile Cancer Scare
penile cancer

04/12/2012 08:03 AM  Top
Darrell123
Posts: 26
Member

Pogue,

Thank you so much for your encouraging words. I don't know that I'm a superman, but it's sure nice to know someone is pulling for me and I've always been grateful for the support I've found here. I'm still doing ok. Sometimes the grief of the divorce really gets me down. And sometimes it's my missing penis that really gets to me. I try to just stay busy and not thing about either. But that's not always an easy thing to do. Your continued thoughts and support is certainly appreciated. Thank you!

Darrell


04/12/2012 10:08 AM  Top
pogue
 
Posts: 38
New Member

im grieving losing 3'' but losing it all must be devastating? cannot imagine how id feel as losing 3 inches myself is bad enough.looking at mine now i dont think i will bother trying to have sex again as its been 3 yrs since we did because of this cancer.my wife would not bother tbh if she didnt have sex again so im under no pressure there.for the first time im seeing a cancer consultant next week as i havent seen one yet because i havent a clue about malignant melanoma especially on the penis,im hoping then i will understand the long term prognosis.i thought after having this op i would be happy to know it had all gone but tbh im very depressed.

more bad news for me,ive seen the skin cancer people and they said not enough margin was taken for a melanoma,they said that at least 3cm should be taken with a thickness of beslow 3.44mm a further 1.5 cms needs removing now if not the cancer will return and if it does no treatment could be given to stop it spreading resulting in death.

Post edited by: pogue, at: 04/12/2012 10:15 AM

Post edited by: pogue, at: 04/19/2012 10:02 PM


Previous discussions I participated in:
Penile Cancer Scare
penile cancer

06/12/2012 06:14 PM  Top
adventurous
Posts: 1
New Member

I believe sex and orgasm are 75% mental and 25 % physical. I had always been looking for ways to enhance my sexuality so I started modifying my penis by piercing and cutting it. Part of the cutting unexpectedly reduced most of the sensitivity in glans. At first I was nervous about how it would affect my ability to orgasm and that worry seemed to compound my problem by taking over and canceling out the mental stimulation part of the sexual experience.

Once I became confident I could still orgasm easily when properly mentally stimulated I began to realize sex and masturbation was now better than ever before. I found I was now better able to enjoy the stimulation from other parts of my body and not have them overpowered by the extreme sensitivity of my glans. My orgasms became more female like with a more gradual build up and much more intense orgasm.

Since then I have considered removing what is left of my glans as it now just gets in the way. I had a short penis to begin with and the removal of my glans would make it shorter yet. Probably to the point of making penetration difficult.

I do however remember the joys of experimenting with and discovering my sexuality after puberty and think it would be extremely exciting to relearn how to have sex without part (or most of) of my penis.

See, it is all in your mental attitude. Instead of looking at this in a negative way you have to turn it into a positive and relish the adventure. A smooth male pube can have a very erotic look and feel if viewed from the proper perspective!

BTW - I had years ago permanently removed all my hair from my pubic area. After that I could not believe how sensitive my skin was in that area. During sex I would (and still can) orgasm just by having it caressed.

Post edited by: adventurous, at: 06/12/2012 06:15 PM

Post edited by: adventurous, at: 06/12/2012 06:16 PM

Post edited by: adventurous, at: 06/12/2012 06:17 PM

Post edited by: adventurous, at: 06/12/2012 06:18 PM

Post edited by: adventurous, at: 06/12/2012 06:19 PM


06/13/2012 02:26 AM  Top
sirocco97
Posts: 33
New Member

great post Mel,Pogue,and especially you Darrell.ive been saving holidays ,not taking days off ,trying to make sure i had hours( in the bank) if i got sick again.reading your posts i just rang management and told them im taking the week off my wife wants me to have..reminds me of the line from the movie SHAWSHANK REDEMTION ..get busy living or get busy dying ...fuck it im getting busy living

Post edited by: sirocco97, at: 06/13/2012 02:28 AM


06/21/2012 12:36 AM  Top
Darrell123
Posts: 26
Member

Pogue,

How are you doing my friend? What is going on with your health? ANd have you had to have further surgery?


06/21/2012 12:42 AM  Top
Darrell123
Posts: 26
Member

Sirocco,

What a great line from the Shawshank Redemption. I suppose I did just get to that point in life. For so long I kept just spinning my wheels feeling sorry for myself. But as Mel said, if you focus too much on what you don't have, you miss out on what you do have. I've already lost enough with this cancer and this surgery. I don't want to die yet, so I need to get over it. Do I miss my penis and my old way of understanding sex and love. Yes, I truly do. But, until I can find a new way to express those things, and find someone to express them with, that the old things (including my penis, are gone. I now have to get on with life, and keep seeking that which is new. How are you doing? Any further surgeries? How is your health?


07/15/2012 12:30 AM  Top
sirocco97
Posts: 33
New Member

twelve months to the day. since they took half my mate away.all clear so far .hope it stays that way.that wasnt meant to rhyme.just aware of the fact its been twelve months since my penectomy
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 3 4 5 6 Next > End >>


Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved