Welcome Bartman48093, I can only imagine that there are more support groups for penectomies out there due to transgender than cancer. Here in Canada, I know of none which is sad, and leaves it to pioneering groups from the ground up which I can only imagine be a long and arduous journey. Yes, Penile cancer is rare...but do you find once having it, one hears of more cases? Yet there seems to be a silence. Even to find sites on-line for particulars on the subject and living with it are few if obsolete. It surely leaves one more alone. I would suggest you keep posting, therefore indexing occurs, then when others do a search, they too might find it and perhaps through this, a contact may occur. I must congradulate you on the many years from your surgery...many are not so lucky...though I am sure you have many things that make you not feel that way...tis a big life change. xox Mel Courage does not mean that we do not know fear;
Rather that we carry on in spite of being afraid.
Courage does not always roar, or never shed a tear;
It lets us face life without allowing hope to fade. |
"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)
