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liamacker"The part of my recovery plan that I would say made up 80% is MDJ. I suffered a lot prior to finding MDJ, felt alone and had no one to talk to who really understood me. In the Bipolar Group I found like minded individuals who I could relate to and who offered support to me when I needed it. As I recovered, I could then offer support to them which gave me a good feeling about myself. I have met some great people here who I would class as good friends and know I would still be in the slump I was in without them. Now I am stable, I know that MDJ plays an important part in keeping me that way. Thank you MDJ for being there for us all and making us no longer feel alone." (liamacker)

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08/09/2011 10:49 PM
sirocco97
Posts: 33
New Member

thanks for the info,and yes i looked at nsblues site yesterday .she has done her husband proud.its quite sad that i have to get information from people on the other side of the world .but thats how rare it is.sadly people wont stagger across this site till its to late .because most men arent even aware that cancer of the penis exists.and for example the population of australia is approx 24 million,half of which are men ,so thats 12 million,they say that one in two people will have some kind of cancer over a life time.so thats 6 million.penile cancer is resonsible for 1 in 100000 cancers so thats about 60 men a year in australia will be diagnosed with penile .cancer ,and if you take into account that. it rarely affects circumcised men the figure is probably closer to 30 men a year.hardly enough to make any government pump money into research.so it looks like we are on our own.all the best, hope hubbys fine. talk soon
Reply

08/10/2011 06:30 AM  Top
Tracylynn216
Posts: 23
New Member

I agree with you 150%. We are in New York and I am grateful for the strides we have made in Cancer but, this type oscancer is still not well known. Everyone that we tell looks at us like we are crazy...

You are your own best advocate! feel free to reach out is you have any questions, don't know if we have the answers, but at least someone who is actually going thru it can shed some light on it for you.

Good luck and take care of yourself


Previous discussions I participated in:
Hi I'm Melanie
penile cancer

08/10/2011 07:12 AM  Top
lightfoot
Posts: 26
New Member

sirocco.....as i said earlier im an aussie living here in new jersey this penis cancer stuff is as rare as a 3 legged unicorn .your right with the stats from aus .i contacted the australian cancer society and asked for info on the subject and they didnt have a clue.what i was able to find out was that since 1973 there have only been 64 reported cases of penile cancer ....so on these facts if i was still living in australia you and i would be cult heroes. funding is non existant, the same info you find on the net is the same on every site you go to .im trying to get it more out in the open but i face brick walls .i even contacted the KNOW YOUR TACKLE (have you heard of them)people in australia about 3 months ago and they havent bothered to reply .so to sum it up mate its a learning process as you go thats why sites like this a bloody helpful as it gives one the sense that he is not completely alone with what i call the ....BASTARD.....give me an email when you can ok mate take care

08/10/2011 10:32 AM  Top
Tracylynn216
Posts: 23
New Member

Hi Lightfoot....

How are you???

We have been thinking a lot about you, hope all is well..

We will be in contact

God Speed


Previous discussions I participated in:
Hi I'm Melanie
penile cancer

08/10/2011 04:57 PM  Top
sirocco97
Posts: 33
New Member

LMFAO at cult heros,i know there is a sick sexual fetish where people like having sex with amputees,however i think we would be outcast from that even lol

Previous discussions I participated in:
what kind of music do you like
penectomy midshaft

08/10/2011 05:48 PM  Top
sirocco97
Posts: 33
New Member

actually i just seen a very good 10 minute interview on youtube of all places .with a british guy ,his wife and surgeon.just google penis cancer.its the first video on page one

Previous discussions I participated in:
what kind of music do you like
penectomy midshaft

08/11/2011 04:14 PM  Top
lightfoot
Posts: 26
New Member

tracylynn.... i am doing fine .thinking of you guys also.will wait to hear from you ....lightfoot

08/14/2011 11:19 PM  Top
sirocco97
Posts: 33
New Member

went in for a check up today exactly one month since surgery,all 3 specialists happy .felt every thing .told me it was healing well and to come back in 3 months.so with a bit of luck things should be ok.

Previous discussions I participated in:
what kind of music do you like
penectomy midshaft

08/15/2011 06:57 PM  Top
lightfoot
Posts: 26
New Member

great news mate

08/16/2011 06:56 AM  Top
Tracylynn216
Posts: 23
New Member

Thats wonderful news!!!

Previous discussions I participated in:
Hi I'm Melanie
penile cancer
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