Parkinson's Disease Support Group

three yeasr after the day i lost my brother to comps from pd i found out i have it . . dont understand why god would do this to my family . the last thing i got to say to my mom before she pasted , was i have pd . on carb/levo have been for 3 years but they no longer work and i just moved to oregan and yet to find a dr here . CANT STAND THE SHAKES ANYMORE

Hello Zandrastar!

It is a pleasure to meet you! I hate absolutely everything about Parkinson's! It has been nothing but a pain in my ass since I accepted that I have the damn disease! One good thing came out of all this hell and that was finding how precious every moment of living is! It's the small times, the silence of an afternoon without television, the voices of our loved ones as they tell you about their day, the smell of coffee brewing, and after you realized and accepted all those great things you were missing before, you still have this stupid, kick you when down,make you look stupid in public, fucked up disease!!

Welcome to the group!

Jupiterjane

thanks for the welcome . and good to know that i am not alone in this stupid shit . god i wish it would go AWAY .

Hi and welcome...this is a great place to share burdens and happy times, learn new things, show off our creativity and to laugh; even at ourselves. Please remember, we have Parkinson's, but don't let it have you. Strive to see and experience the positive, enjoy every good moment for the precious gift it is and know that you are not alone with this f*cked up, pain in the butt, frustrating and very unpleasant disease anymore...

...Claire

You are NOT alone.

Welcome to our group.

Steve

Welcome Zandrastar, welcome to a place you can vent yr anger. Once we do that, we can also read what others with PD are going thru & then we realise we are not alone, it helps somewhat, ofcourse it doesn't make it any easier, PD is scary but when u read about new research, medication available, how it has helped others, u'll begin to have hope.

Yr priority now is to find a doctor in Oregan. We have a wonderful member 'Origannative' maybe she can help, I will immediately write to her & draw her attention to yr post.

Meantime, I hope u receive the support / answers yr looking for with us. Atleast one thing I can assure u, u'll forge some solid friendship.