Parkinson's Disease Support Group

I personally believe that thee diseases are due to our own careless with pesticides, atomic bomb testing, industrial chemicals, etc. I did voice my opinions in a diary entry I called "A Medical Tsunami".

You can find it here:

http://www.mdjunction.com/diary/songfellow/a-medical- tsunami

Steve

When cancer was diagnoised years ago... a person said they had cancer.. It was the "Big C" of diagnoises. Now a days cancer has its own individual groupings and treatments/remissions.

Parkinsons seems to be the current catch all for similar symptoms that PD medications can/do help.

I dont believe all PD people obtain the disease from the same source. But there still must be a similar gene that is the trigger. In our case, it is family history. Cousins didnt all obtain the PD diagnois, but many have neuro diseases. If noted seperately, doesnt seem connected. Put into the same room, all have a neuro disease that is not curable. Some can be diagnois with a test, others can not.

With information, gene and tissue testing, once a localized gene can be broke down, then different treatments medicaitons occur and remissions begin.

A cure, I dont see with any disesae. But there is remissions or trades of quality of life with medications and treatments.

I do believe that somewhere down the road quality of life will improve. Tremors can now be maintained for a period now. Thats a start. Cognitive thinking not so much. That will be much later.. saddening for our household.

Depends on where you are in your disease process, how healthy and active you stay and how open you are to new things or opportunities that become available. Example as Steve.. yeah Steve!!

Keep the faith.. The Lord provides.. but as all of our bodies deteriate. The goal is not to stay in our earthly bodies but to live for eternity. Its how we live our lives while we are on this earth.

Easier to say when it's not me who has the disease.. but one who lives with the disease. My spouse lives a happier life not realizing his mind is not truthful with what he sees or thinks.

I see the changes, the heartache of losing my spouse to dementia. I may not have it.. but might as well have it noted as spouse of PD on my medical chart. It continues to take a toll on his loved ones.

PD is not user friendly to anyone connected.

So will there be a cure in our life time.. Who knows.. could be, maybe, maybe not.. Live your life the best you can, pray for the best, and know there is more to life than the just living.

Blessings!

Craftcordmom

Getting real has it's place too, as we all have to go through the process of Denial, Bargaining, Anger, Grief and Acceptance, but Hope is the anchor that hold us to ground and keeps us putting one foot in front of the other.

<3 Karen

Hugs frorm Claire

The problem is the doctor has the job of confirming you are sick,the sort of issue that is no fun to deal with for you, or him/her.

I had one neurologist assure me that L-Dopa would treat the PD and I would likely die from heart disease before my PD became a problem.How is that for comfort and positive feedback?

I really hate the sales pitch, marketing to PD. So it becomes important where you look for the positive," The truth is out there ", Clarence