Parents of Bipolar Children Support Group

My daughter is in the hospital again for the third time at 11yrs old. The doc says PTSD from my ex husband trauma. She has been diagnosed from her reg pdoc with bipolar psychotic disorder and ptsd. the hospital doc says psychotic disorder mood disorder and a prominent ptsd. I am so frustrated i want to pull out my hair because they say she is getting better, but can tell from my visit today she has TOTALLY snowballed them all. She has this WILD look in her eyes and she is just bad still if not worse than when she went in. They want to release her monday. I want to scream for help for my precious daughter, but i know i wont get any. When i talked to the social worker it was supposed to be with the pdoc at the hospital. He left for the day at 1230-1pm after i had driven nearly 2 hours to get to this psych hospital which had the ONLY available bed in the state the night my daughter was admitted into the hospital after having hallucinations, suicidal thoughts and plans. I really am ready to just scream at these people and say LOOK AT HER. But i know they are so fixed on this and she has them so manipulated and they just wont listen to me.

At least they fixed the prozac after they raised it when I had already said NO. GRRRRRRR

I am so sorry to hear. My daughter has been hospitalized twice and I know i had to be her biggest advocate. I hope that her doctors will listen and understnd your concern. I will keep you in my prayers.

Thank you I am a huge advocate of prayer.

I was wondering if you ever got any help for your daughter. I am at a witts end right now. While I was reading your story it was as if I had written it myself.. I am also to your point where I just want to scream..medicaide is now refusing to continue to pay for her treatment she has been diagnosed with bipolar with physcosis also and has been hospitalized four times now. I am not sure which way to turn my daughter is so deceptive she has them believing that she is better when in fact she is not if so maybe worse than when she first went in. It seems to me as your had recently experienced a similar situation and maybe you could help us figure out what to do>

thank you so much kim...her pdoc is who put her in the hospital the first time after that she has been hospitalized over and ever again. Now austin state hospital is telling me medicade is unwilling to pay anymore and that they have to release her. Yet she is still seeing the shadow and trying to kill her self and they are still going to release her. Even though she walked in the conference room and told them that this morning. As far as medicines you are totally right on that one they have her so medicated she cant even stay awake to talk to me on the phone. I am terrified what is going to happen in the next few days because they want to release her and she still wants to hurt herself and others. I mean its like they want me to be superwoman or something and never leave her side never sleep never eat or anything. Not to mention the stupid doctors everytime she tries to talk about the shadow they shut her up and say lets not focus on the negative lets focus on something positive. So I am afraid if the shadow tells her to do something she will not mention it anymore because that is what they have been drilling in her head since she first got their months ago. I swear if i get through this in one piece i am going to help somehow or someway help other parents and kids deal with this. There is just simply not enough resources out their for our children with mental illnesses...basically as another doctor told me she would have to be dead before the state will actually take notice. Which is really sad because our government is supposed to be there for us and for our children. Thank you for the blessings and prayers and I to will keep you in ours. Crys

Kim,

I totally agree that the health care system does not work for our children for children suffering with mental illness. When and if we ever make it through this ordeal I would like to try to become some sort of special advocate for our babies. We need to fight for their rights also. They are young and can not fight the government. I live in Texas which is one of the hardest states to get help for mental disabilities. It is not that we are asking for a handout or anything just help us learn and take care of our children the best way we can. I wish people would understand what so many others like us are going through and offer some sort of help. Instead they dope our children up so they cant think straight and call it that. I will not give up on my endeavor to help as many children as I can. Kim you also please keep the faith and you and your family are in my thoughts and prayers. Crys

Post edited by: juetta29, at: 08/02/2012 11:07 AM

You are so welcome. I think if all of us parents stand together we can accomplish something I am not sure where we should start but I want to be an advocate for children with mental illnesses. Apparently to our country and states now mental illnesses are not worth fighting for. Well I disagree. Before we go to other countries and help those people maybe our government should take care of our children first, they are the future. I know that are children are young they need a voice to speak out for them. So far I have been told that they use to help us but people took advantage of the system or something like that which is why they do not help the children in the United States anymore. We must stick together to help our children. I am not sure where to start but at this point I am willing to do anything Prayers are being sent your way love crys

I just have to say I feel for you and my heart breaks as well. My daughter elaves tomorrow for a long term treatment facility and I am grieving already..To see our kids hurting and wonder how they feel inside kills me as a mom.I know how you feel about worrying and staying by her side.I jope that you find another option for her..My daughter also sees "the witch" but she hasn't lately on the lithium..her meds are better but I worry about her too in this whole new place. I often wonder if going to these hospitals are traumas within themselves to our kids. The advocate idea I have had as well. someone needs to stand up for our kids! I will pray for you hun and your kiddo..CC

Oh goodness I am so sorry honey. Which long term facility is she going to if I can ask. We have been searching for one since all this started and keep getting the run around. She is on traditional medicade. Please let me know honey and I think that you and i and the others should get together and form some sort of group for our children. if anyone would like to talk you can call me 409-926-9040

Used to years ago they kept too long and now they put them out door too soon because insurance IMO Mine been in hospital many times past 7 years but this year shes been in twice within month I told them they let her out too soon end June and came home worse then when she went in and in 2 weeks she was back in but after 2 weeks they couldnt get insurance to pay another week so again she was home to soon she used to stay close to month and things was better for a while when shed get out

Post edited by: xceldanes, at: 08/06/2012 08:18 AM