I was born with Arthrogryposis (AMC), muscle and bone disorder. I didn't start having any major problems until I turned 20. About two years ago I developed Trigeminal Neuralgia (TN). It started with a tooth ache, but I have no bad teeth. They sent me through the about everything you could think of. I was told that where they waited so long to diagnose me that it has caused me to develop RSD. In my spare time I love to do a variety of things just ask. Due to the TN I have very little pain free days which is a downer. I am from Raven in Kentucky, out in the mountains. I love it here except for the lack of doctor. As for the stage of RSD I am not sure, but it hurts really bad in my head, neck, shoulder, and leg. It is all on the left side. I have alot of jolts in my sleep. Does anyone else? The treatment I am having now is trigger point ketamine injections, fentenyl patches 50 mg, hydrocodone 7.5 mg, lyrica 450 mg, tegretal 50mg, and a bunch of other medications I take for my AMC. I stay in alot of pain. I have really bad panic attacks because of what I was born with. They have me on valium and cymbalta for the problem, but I can't even go in Wal Mart until late at night. They don't help to much. What about you?

Peace & Love,

Mandi