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04/30/2012 02:06 PM

Thanks for being here

victorious1
Posts: 3
New Member

I chose my name because I am blessed to be alive. I did not know I have diverticulitis until I was admitted to the hospital with an abscessed colon. By the time I realized how sick I was they told me I must be blessed because I would have died if I had not went to the hospital when I did. I was in the hospital for 3 weeks and sent home for my system to rest for a few months so they could remove the bad portion of my colon. Well things didn't go as planned because after about 5 weeks at home and not feeling much better, I was told I had another infection. After a week in the hospital, my surgeon wanted me to go with the original plan and once the infection cleared wanted me to go home. However, my family dr and infectious disease specialist did not see the point. My family encouraged me to get the surgery over with so I did. During the surgery my dr discovered that my uterus and rectum had fused themselves together causing my rectum to thin and she tore it. This is how I ended up with my stoma. She thinks after waiting for 6 months she will be able to reverse the surgery.

I am here searching for any information about this condition. My surgery was March 22 of this year. I am especially searching for any help on foods that cause loose stools so I can avoid them. Also because my stoma is very small according to my nurse and not very high off of my skin ways and the hole in not in the center but towards the bottom and bowel is getting pushed under my wafer instead of going in to my bag; so this issue is a concern of mine. Using the barrier rings helps a bit, but not for long. Also my insurance is not very great and does not offer me many choices with supplies and I can not afford them so I need to do the best I can to make everything last as long as I can.

My doctor does not know of any support groups in my area so I decided to search for an online group at my sister's urging. My sister is my rock without her reminding me how blessed I am to be alive I probably would not be able to handle any of this.

Thanks for listening.

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05/05/2012 08:15 AM
libit
libit  
Posts: 2449
VIP Member
I'm an Advocate

Victorious you can contact Convatec, one of the manufacturers of ostomy supplies and see if you quaify for the program getting aid for your supplies. There is a post on here about that. If you cannot find it let me know and I will pull it up for you.

My stoma faces down like yours. I use a wafer that is pretty good and occassionally will have a leakage issue but not often. Be sure and stand in front of a mirror when you are putting the wafer on to get a good snug fit.

I do not have diverticulosis but crohns and the ostomy due to that. Mine is reversal but I've had it just over 10 years.

If you have any questions or can't find the post on the financial aid program for ostomies please let me know.

Glad you have support from your sister. We need a lot of that!


05/07/2012 03:20 AM
victorious1
Posts: 3
New Member

Thanks so much libit. I will look for the post. I have a home nursing care right now for my wound vac and she has been putting the wafer on for me. Part of my problem is that my stoma keeps shrinking and lays pretty flat to my skin I [lan on trying to get ahold of the ostomy nurse at the hospital I was in and see if I can get an appointment for this week.

I don't know what I would do without my sister. She is the only thing keeping me sane in dealing with all of this.

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