http://www.mdjunction.com/forums/ostomy-discussions/feed http://www.mdjunction.com/forums/ostomy-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Fri, 24 May 2013 18:10:09 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/3855877-leakage-problems/limitstart/10#10652399 I am so sorry you are having this problem. I have a large hernia I'm waiting to have repaired so I know how frustrating it is when your bag does not hold. I too have had my bag loose its seal. I know how horrible it feels with itching and burning from frequent changes and how your stool can damage your skin. I have been using skin prep wipes and this layer of protection has saved my skin and helped to prevent further breakdown around my stoma and anywhere the tape touches my skin. I'm not s... Tue, 30 Apr 2013 15:52:13 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10648039-stay-hydrated-when-you-are-ill#10648039 Hello everybody, Recently, I had a case of stomach flu that eventually turned out to be pancreatitis. While the coaches that I work with got the flu and was out of their system within a day or two, I got it worse because of my ileostomy. Since I no longer have a colon or rectum, I had nothing to keep fluid in my system. In short, everything I drank went through bag and everything I ate went back up. I got severely dehydrated and had to stay in the hospital for a few days while receiving a... Sun, 28 Apr 2013 13:48:53 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10531909-awful-rash-under-ileostomy-bag#10648013 I sometimes have the same problem. A nurse told me that milk of magnesia works if you dab it around the area. The irritation goes away in a couple of days. Ileo... Sun, 28 Apr 2013 13:39:54 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10600265-leftover-supplies-after-reversal#10600265 My girlfriend had her reversal surgery and it's all good, but we now have some leftover supplies. Our insurance and ileostomy supply place were such that we ended up purchasing supplies off of ebay because it was faster and cheaper with less red tape. We've got a new full box of Convatec 413168 Sur-Fit NaturaŽ Two-Piece DurahesiveŽ Skin Barrier. (box of 10) that we'd like to sell. We paid $35 for the box, but will sell it for $26.00 free shipping. We also have a partial box of HOLLISTER 18... Fri, 05 Apr 2013 22:39:24 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10537870-entering-the-dating-scene-in-san-antonio#10537870 I am a woman who has an ileostomy for 23 years due to Crohn's Disease as a young person. I am 44 now, so I was only 21 when I had the surgery back in 1990. Back then I went to the support group on Data Point, but being so young at the time, I felt VERY out of place. So, I only attended a few meetings. Now I am 44 and a recent widow. The thought of dating after being with my late husband of 18 years scares me to death because of my ostomy. When I meet my husband all those years ago, I was scared ... Sat, 09 Mar 2013 20:56:09 -0800 http://www.mdjunction.com/forums/ostomy-discussions/introductions-personal-stories/10531886-howdy-from-michigan#10531886 My name is Wade Lee Haron. I live in Flint, Michigan. I have been through several months of 'hell' per se. My colon ruptured in early June 2012. I had emergency surgery and ended up with a colonostomy. I nearly died from several complications and was flown to an out of town hospital to spend several weeks in their Sugical Intensive Care Unit. After several weeks, I was transported back by ambulance to my home hospital where I stayed another few weeks. I had a 2nd surgery when my stoma started cl... Thu, 07 Mar 2013 08:10:39 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10525638-at-the-end-of-my-tether#10529948 Hang in there. It will get better. Have you tried putting cloth tape or athletic tape around your wafer. I always put tape around mine for added support. I use the Coloplast Sensura base plates and pouches. They work great for me. I can wear my wafer and pouches for about a week before it starts to leak. Milk of Magnesia works for my skin if it becomes too irritated. Hope this helps. Ileo... Wed, 06 Mar 2013 11:03:38 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/3524959-how-to-keep-bag-secure-when-shower#10526176 i can shower and have a bath its only time it stays on coloplast sensura i use you can gt free smple from them... Mon, 04 Mar 2013 16:57:39 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10170700-i-thought-ileostomy-was-a-bypassbut#10487216 Hey,how u doing?? Let me introduse my self my name is nayo, I also have a colostomy bag and I had the same thing like ur partner, is normal it was just like stool and it freaked me out. I even took a sample 2 the surgeon and they said it wasn't stool, it was mucus so I believe she's going threw the same thing I did but 4 her 2 b on the safe side then take a sample and have them check it out hopefully is nothing 2 worry about. Wish her the best Good luck :)... Fri, 15 Feb 2013 20:28:20 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10477620-double-ostomy-belt#10477620 Hey all. My Father has had bladder removal (urostomy) and a colostomy (due to injury during the bladder surgery) all in the span of 1 year. He is getting stronger and healthier and more active (thank you Jesus!) He now needs advice regarding ostomy belts. My Father is very private and is looking for something that is comfortable, will not show under his clothing and will not block or impede the flow from his stomas. Does anyone have any recommendations? Remember, he has to have something ... Tue, 12 Feb 2013 06:16:32 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/1554598-ileostomy-very-liquid-and-filling-fast#10329365 I agree with many on this forum that marshmellows help slow down output, especially when I know I will be changing my bag and wafer. Peanut butter also works for me. For thickening the stool, applesauce works. For me, the more liquid the stool, the better for me because it is easier to remove from bag and I don't have to add water to bag to remove more solid stool.... Sat, 15 Dec 2012 08:34:31 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10251314-freaking-out-a-little#10317676 So sorry ;) It is always nice to see such a supportive significant other!So glad the surgeon was able to fix everything!... Mon, 10 Dec 2012 15:29:14 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/2368752-bag-blowouts-colostomy/limitstart/10#10295652 Hi, I had to have a high colostomy (upper right quadrant, near the diaphragm) a year and a half ago due to severe infection (peritonitis) from acute necrosing pancreatitis, which really messed up my intestines, causing a stricture and internal fistula. I use Coloplast bags, and soon found out that the vent only functions for 12-24 hours, and then I was having the same problems as you with the bag ballooning out with gas and liquid at night, often causing the bag to lose adhesion from ... Sat, 01 Dec 2012 09:19:14 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/2982254-stoma-blockage#10248137 what finally happened? My gf's stoma is very swollen tonight..so much that we had to cut the 'faceplate' larger than usual. She is 6 months post op. I am wondering if it is a blockage, as she ate some popcorn two days ago.... Sat, 10 Nov 2012 15:23:52 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10220872-support#10235038 I use to empty my bags but some always was behind an couldn't take knowing there was some still there an always afraid of the smell. I could smell it so I knew other people could too. As for my wafer breaking down I only change it about every 7 to 10 days so I think that is pretty good. The bags last that long also. As for the smell when I was emptying the bag I bought this deodorizer for this purpose ($25.00) but it never worked very good. Thanks for replying as I like hearing from other peopl... Mon, 05 Nov 2012 15:16:19 -0800 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10199864-normal-#10212867 I agree totally with dmtosis. Walk by faith. When you find that special someone, he will love all of you and most importantly for who you are. I know it seems strange, but you will know when the time will be right to discuss your ostomy. There is no exact time to tell, but you will know when it is the right time. Trust yourself. With an ostomy or illeostomy, nothing is always normal but rather unique. Not odd, not weird, but unique. Although it might not feel normal, it is probably mor... Sun, 28 Oct 2012 10:50:10 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10205878-weight-loss#10205878 No, no one looses 7 pounds in four days unless they are trying to or I'll. have you been sick or on new medication?... Thu, 25 Oct 2012 15:38:05 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10205662-ostomy-recovery#10205662 Hello, I had surgery in March 2012 and I am doing great. This is my second rectal cancer. I was cancer free for nineteen tears. I ended up with rectal removal and a permanent colostomy. There are so many foods that give me gas. For the most part I have figured out which foods and try to avoid them. I am on xeloda and nearing the end. I have one more round. My question is will I ever get my flat stomach back. I wear pants a size larger to accommodate my waist. Anyone else have this pro... Thu, 25 Oct 2012 14:03:50 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10086400-little-sister-struggling-with-accepting-ostomy#10116677 Hello Ashley, The best advice I can give you is to do what you are already doing: being the great sister that you are and always being there for your sister. It sounds like she just had the surgery. Those first few weeks after surgery were brutal and took a while to get adjusted. Besides the pain after the surgery, the biggest adjustment was to get used to changing the ileostomy bag. It can be very degrading and frustrating when waste shoots out of stoma all over the place and there is... Sun, 23 Sep 2012 12:41:19 -0700 http://www.mdjunction.com/forums/ostomy-discussions/general-support/10099746-support#10099746 Hi my name is Donna,Don't know how many or if any you have read my previous comment. I had 6 inches of my colon removed on March 8, 2012 which left me with an stoma. The end of Jan 2013 I hope to be able to go an have a reversible surgery. Reading all your comments helps me deal with my situation as I don't have it as hard as some of you. We just have to keep our chin up an look to the future so we can go on an live day to day. My heart goes out to all of you who are so young an have so much lif... Mon, 17 Sep 2012 13:26:46 -0700