Osteogenesis Imperfecta Support Group

I have a nephew that is 8 years old and has type 3. He has been on pamidronate at 5 weeks and was taken off at 6 years. He has been put back on the infusions and now we are wondering about rodding. What can we expect if this procedure is done for the femurs only?

My daughter has em and we love em!

the shriners hospital in Tampa Fl did it first but she grew so we got em replaced by a local doc.

she has done so much better since her rods

Again thanks for your reply. It is very helpful and look forward to more conversations as we go through this. Best to you and your family. You all are very special people. Cheri

Your very welcome and thats what we are here for is to learn from each other.

May God be with you and your family,

~Kim~