Organ Transplants Support Group

Hi,

My daughter now 17 had a double lung transplant 6 years ago after a diagndois of PPH. The first year was very rough but the last five have been great.

I am soooo glad to hear that! If you don't mind my asking...what is PPH? Also, I'm sure there are differences between lung transplants and liver transplants, but can you give me an idea of what your daughter's first year was like post surgery?

Its Primary Pulmonary Hypertension. The first year was hell. She caught more infections and had rejection three times. With the lungs open to air and being around alot of kids you can guess. Her doc started her on methotrexate weekly by pill. Then suddenly it all just stopped. August will be 6 years post-transplant. She is a second degree black belt in karate, a flyer in cheerleading, and dates as much as any girl could want (more then my husband would like!). I don't know there are still times when its all just a bad dream I can't wake up from yet I am very greatful.

Have you had contact with your donor's family? Tell me more about your daughter.