Organ Transplants Support Group

I just wanted to introduce myself. Im Kristin Molini and 23 years old. I am a 5organ transplant recipient and am very excited to be apart of this group. I received a stomach, pancreas, small intestine and large intestine and liver. I hope all is well and look forward to talking to all of you.

Kristin

Welcome to the group! Your story sounds amazing! You have been thru so much in your life already. I volunteer for the Donate Life organization in Wisconsin. I am part of a work group that is trying to build our state registry. Actually, I'd like to see our organization become more organized, possibly with it's own staff (as opposed to volunteers who are the OPOs, Tissue & Eye Banks and transplant centers) but that is a different discussion.

I also am the "computer geek" volunteer for the National Kidney Foundation of Wisconsin. I got involved with NKFW because they do a lot of work for the transplant community. My NKFW connection got me in the door with DLW.

You might want to explore MDJ for other groups, particularly any that may deal with the health issues that you have faced. I try to help members that are experiencing cirrhosis as that was the cause of my need for a new liver.

One last comment on using MDJ. Feel free to explore what other members have written. You can go to any members profile by clicking on the highlighted member name next to any of their posts. Scroll down on the profile to see their diary entries and the posts that they have made. Diary entries are written with the understanding that other people have access and will read them. It's not like a personal journal that many people keep for their own use so don't feel like you are prying!

Take care! Keep coming back. We may be a small group now but the more we all participate the more members we are likely to add to the discussions!

Dennis

Do I start a new post every time to post or no? Can you help me with the site.

Kristin

Feel free to start new discussions anytime! The rule of thumb that I follow is to start fresh when you have a new subject or a specific item that you want to post. There are multiple "forums", aka "boards", that you can post on depending on your subject.

There are also three other means of communicating here on MDJ: personal messages, "hugs" and diary entries. Personal messages (or PMs) are best when you want to discuss something that you would prefer to stay private with another member and verse-visa . Hugs are short little pick-me-up messages you can send to another member, if for no other reason then just for fun to stay in contact. Diary entries are public and are tied to your own profile. Different members use the diary in different ways. I use mine to track my own transplant journey and other subjects I wish to share with the MDJ population.

You can visit any other members profile by clicking their logon name when it is highlighted such as next to a post a member makes. I usually recommend that new members read thru the posts and diary entries of other members of the group, just as a basic orientation. This transplants group is represents both people who have had transplants of some sort and also people who are waiting for a transplant who wish to see what life is all about post-transplant. I don't sugar-coat anything about my own post-tx issues (fatigue and rather severe tremors) because I don't want anyone to be suprised to find out there are costs associated with the better life I have now.

Sorry I didn't get back to you sooner--I'm on a kinda "mini-vacation" sitting for my granddaughter at her house!

Take care! Hope everything is going OK for you!

Dennis