Occipital Neuralgia Online Support Group

-Scott aka, "vbiker"
(because someday I'll get better and can ride again)

I have had ON since a car accident in 1983, but I didn't get a diagnosis until 2004. I struggle with constant pain and the "other" neurological effects of ON. You can find me on twitter as @asideofpian.

I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult

-Scott aka, "vbiker"
(because someday I'll get better and can ride again)

I have had ON since a car accident in 1983, but I didn't get a diagnosis until 2004. I struggle with constant pain and the "other" neurological effects of ON. You can find me on twitter as @asideofpian.