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C2 neuralgia ForumsGeneral & SupportPain Specialist or Neurosurgeon for Nerve Blocks?
06/25/2009 02:49 AM
cmiller
cmiller
 
Posts: 863
Member
I'm an Advocate

Who do you all go to see for your nerve blocks? A pain specialist or a neurosurgeron and what made you decide on your choice?
I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult
Reply

06/25/2009 09:49 AM  Top
brugette
brugette
 
Posts: 941
Senior Member

I go to a pain mgmt. specialists for my nerve blocks.
As the group leader I am happy to give you my opinion on issues, but please remember I not a medical profession, just another suferer of ON.

Some days it's not even worth chewing through the restrains.

Same Nightmare, Different Day

06/25/2009 10:18 AM  Top
mrsklemme
mrsklemmePosts: 164
Member

I have had two different neurologists and a pain management specialist do my blocks over the years. My first neurologist was the best but she went into research. I'm not sure if there is a way to know who will be good at them until you have them done. Maybe talking to other patients but that's hard to do. All of my doctors gave me the same meds during the injection but it was all about technique.

06/25/2009 01:01 PM  Top
KariJo
KariJo
 
Posts: 118
Member

I use my pain specialist because that is who I went to before I ever met Dr. Blake, a neurologist, that would do them and had experience in doing them. At the time I wasn't seeing a neurologist. Just be sure you ask either and see how many they have done and what their sucess rate is. I would want to be sure they are knowledgeable and seasoned enough to know what they are doing.
Kari Jo

Good friends are like stars...you don't always see them but you know they are there.

06/26/2009 08:12 AM  Top
cmiller
cmiller
 
Posts: 863
Member
I'm an Advocate

Thanks for the response. The reason I asked is because I had a pain specialist do bilateral nerve blocks at the Occipital nerve and they hurt like #%#$%#^. They also did an epidural nerve block for my herniated disk but that was under anesthetic and was a piece of cake.

The pain specialist asked me to bring my husband in for the bi-lateral n/b because many people pass out from the pain. I didn't pass out I just vomited up my lunch of dark rye bread and vegemite ... one black mess hahaha. I have an appointment to see a new neurosurgeon in a few weeks and I think I am going to see if he/she does them because I hope it can't get worse than the first ones. The first ones did help about 60% for ten days; not really worth it but my PPO requires a second lot before approving the implants.

Thanks again

Chloe

I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult

Previous discussions I participated in:
Lack of sleep,knowledge and support

06/26/2009 08:31 AM  Top
mrsklemme
mrsklemmePosts: 164
Member

My 1st neurologist was the best at them! She had me lay down on my front. She did the block as 2 shots on each side. The first numbed the area. It was painful but it made it so there was no pain for the actual block.

My 2nd neurologist and the pain management doctor both do it in a single shot per side. It is much mor painful this way. They also just have me sit forward in a chair. One actually has his nurse give me her hand to squeeze. This makes me laugh because I would never squeeze her hand as hard as the pain would merit. I just suck it up (then complain to my hubby afterwards Smile )

I think it really is all about technique. Good luck. I always tell myself getting through it is worth the relief. Of course that was when I got 3 months of relief. Now I'm down to a week and a half and part of that is recovery time from the procedure!


06/26/2009 08:39 AM  Top
brugette
brugette
 
Posts: 941
Senior Member

Chloee, my insurance doesn't cover the anesthetic anymore, I have to be awake for my nerve blocks/trigger point injections.

When I first started having the pain/sensitivity on the top area of my head my PM gave me two sets of injections, but there were up 2-3" from the base of my skull. Don't know if this was a true ON block but I was actually there for a consult for this new pain/feeling and he asked if I wanted to give an injection a try. I said sure and he came back, moved my hair, steralized the area and shot me up. It hurt, but no worse than any other shots I've had. Weird, I wonder if he was in the wrong place (up to high) or if that was another type of injection. Any opinions? Just curious.

Is your insurance is going to cover a ON stimulator implant?

As the group leader I am happy to give you my opinion on issues, but please remember I not a medical profession, just another suferer of ON.

Some days it's not even worth chewing through the restrains.

Same Nightmare, Different Day

06/26/2009 08:45 AM  Top
mrsklemme
mrsklemmePosts: 164
Member

Chloe,

Do you mind telling me who your PPO is? I am in the process of fighting an appeal against my insurance company because they won't cover the ON stimulator. Any cases I can find where it is covered helps. Right now we're dead in the water Sad


06/26/2009 11:00 AM  Top
cmiller
cmiller
 
Posts: 863
Member
I'm an Advocate

Hi MrsKlemme,

I have not applied to my insurance personally. My pain specialist looked at my insurance and said thats what they will need before accepting the implant procedure. She told me that the insurance needs a 50% success rate with the nerve blocks twice before they would cover the implants. They will also do a trial for ten days with the electrodes inserted with small incisions and with the little machine on the outside of the body so they can adjust and find out how much comfort it will bring me before the full implant is done.

My insurance is Advantek. It is a school district one in California. I hope that helps.

I get so angry at insurance companies. To me if a doc says you should have it .. they should cover it! End of story!

Chloe

Post edited by: cmiller, at: 06/26/2009 11:08 AM

Post edited by: cmiller, at: 06/26/2009 11:09 AM

I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult

Previous discussions I participated in:
Lack of sleep,knowledge and support

06/26/2009 11:04 AM  Top
cmiller
cmiller
 
Posts: 863
Member
I'm an Advocate

Brugette hiya Tongue

The epidural nerve block was the only one they do anesthesia with. For the bi-lateral nerve blocks for ON, I am going to ask them to inject the anesthetic first next time because I want pain relief from the injections not just the after pain. I have no idea if the doc did it in the right place for you. My doc explained to me that they hurt so much because so much has to be injected and there is very little space there for it to go. I remember having small egg sized lumps either side for a few hours after.

I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult

Previous discussions I participated in:
Lack of sleep,knowledge and support
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