Hello Everyone!
This is formally Chloee. I can't find where i put my password or my login...I usually only use three different ones and I have tried them all with no luck haha I blame the neurontin!
Anyway, I Have been lurking and dying to give support and my 2 cents worth.
Bmac: you need many hugs and drugs. I am so glad you finally got some sleep. I am with you about the noise of MRI's. I call it my half hour of misery no matter how many drugs i take so next time bring on the ZANAX.
Brugette: Hi Sweety, I have laughed with you about the docs having no idea about nerve decompression surgery for ON. I just had the very same experience last week. I was trying to get a second opinion about the neuro-stim implant and so I asked my doc to find a new neuro-surgeon who is up on micro decompression...deer in headlights was exactly what I saw also. She said she will find out and I would hear from the new docs secretary. Hmmm She had no idea what the doc knew about decompression surgery but said that I would have to come for a visit to find out... I guess secretaries cant ask their docs anything for their patients now.n I wish we could interview a new doc to see whether we will be a match before we have to start paying for his professional services heh!
So here we go ... I woke up startled 4 days ago at 6:10 am by a "popping" feeling in my head. It lasted no more than seconds after I woke. I sat up and was headache free. I lay shocked for five minutes making sure I was really awake and this was not a dream.
I have not been headache free for almost a year. Waking in the morning is one of my hardest tasks. It usually takes me an hour at least to be able to get up and cope with my headaches/spasms, usually having to wait until the meds have started working and I can deal with the exhaustion of sleep.
I haven't slept with my husband for a full night during that time also because of the noise of his breathing/snoring and my insomnia. So I ran into him and could not contain my excitement and noticed that the brightness of the morning sun through the windows was not painful to my eyes. I ran outside and enjoyed the brightness and couldnt come back in side. This was HUGE for me. I have made my house a dark cave because of the pain in my eyes and headache pain while in bright sunlight. I turned on television and a very loud advertisement was on and my husband ran to grab the other remote to mute the sound and to my surprise ...the noise did not make all the nerves in my head jump...
So over the day my headache returned and the light sensitivity is coming back slowly...but I have listened to a lawn mower, truck revving and dogs barking with no pain
What happened??? I am so happy but cautious to do anything because I don't want my old symptoms to return. Has anyone else had this happen? I would really like to hear about your experience with this.
I have finally recovered from dental surgery last xmas. About four weeks ago I had to visit the dentist again to get my exposed and infected jaw seen to. The dentist yet again had to cut away the area of exposed jaw. The assistant put 2 and 2 together and realized that the dentist ordered gargling with salt since December five times per day after extractions had made my tongue into sandpaper and suggested Bio-tene products.
That did it! No more exposed and infected jaw! The dentist knew I suffered dry mouth but I guess he forgot... too bad his forgetfullness gave me 6 months of hell.
I want to change dentists but can't because I have already paid for more work. I want to tell him how unhappy I am that I unnecessarily suffered because of his carelessness. I want to tell him to remember bio-tene for any other patient who suffered from jaw exposure and splintering after extractions. He is supposed to be the "good" dentist in town...then one of my therapists told me a secret; the guy has a painkiller addiction and is visiting the local NA on court orders. Does he have the ability to think about his patients to full capacity ... probably not.
So its been a mix of good news for me lately. If only I knew what caused the popping and could repeat it on command haha
Okay, thats my rant for now.
Love and hugs to all my fellow ON sufferers.
Chloe
I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult
Then have the neighbors dog tackle you and that should set ya straight also 