Hey Brugette, I guess I missed this post. I checked out the stereotactic Radiosurgery. It seems like its an upgrade to the gamma knife. I personally think this will be the way to go for ON and ONS for the future. If one can get relief by micro decompression which seems like they cut and relieve the area of compression... maybe stereotactic radiosurgery can work with ON due to its preciseness and lack of incisions (which can cause more pain with scar tissue growth). The problem with ON and surrounding neuralgias is that because it is not a simply defined disorder not many want to deal with it let alone research it and organize trials. I did see on a UCLA webpage about their work with Stereotactic radiosurgery (srs or srt) that: "SRS is also used for certain non-tumor conditions such as vascular malformations and trigeminal neuralgia. At UCLA, the use of a special beam shaping device permits efficient stereotactic irradiation of irregularly shaped targets". Seems to me if they can use it for TMJ why not ON etc Chloe I viewed Stanfords information on SRS and they also call it the cyberknife. On considering their information it seems that its great on tumors etc because they are stable and don't tend to move around. Our problems with ON/ONS is that the nerves giving us pain are often ecapsulated inside a muscle, and muscles move around giving us different symptoms but also probably making it hard to use something that uses accuracy and preciseness for it to work. I would love to read any information on how they use it with TMJ. Just a thought. Anyone else have personal ideas on this subject? Chloe Post edited by: cmiller, at: 06/26/2009 11:31 AM I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult |
