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Occipital Neuralgia Support Group
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07/27/2011 04:59 PM
redrobin1977
 
Posts: 82
Member

Ugh! my head pain came back about 2 weeks ago. The bad thing is I am now in the 2 week range for my surgery (aug. 9th). What I can take is really limited. By the way, does food affect anyone else? My willpower caved and I ate some chocolate cake. The pain got much worse.
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07/27/2011 09:34 PM  Top
MelRose
MelRosePosts: 87
Member

I am so so sorry for your pain. Mine has gotten worse too. I just went through a series of nerve blocks over the last 6 weeks. Some relief, but not enough. I get that severe ice pick stabbing in your eye on my left eye. Also, it now tingles and goes numb on the left side of my head above the ear. Today, however, I woke up pain free and felt good all day until about 8 pm; not long after dinner. I didn't have any chocolate, or cake, just food, but this seems to happen often and I am now wondering if there is something that I'm eating or drinking that could be contributing. I just did Genova Diagnostics test, which tests your gut and will hopefully tell me what could be contributing to this. I have no stomach issues, that I know of. Sometimes you can have things going on that could contribute. I will get my test results in 2 weeks. I'm thinking my doc may put me on a detox. If my results are worth mentioning, I will sure pass my info along. Best of luck to you with your upcoming surgery. And hope you will be pain free soon!

Melanie


07/28/2011 05:39 AM  Top
redrobin1977
 
Posts: 82
Member

I have never heard of that testing.

07/28/2011 11:04 AM  Top
cmiller
cmiller
 
Posts: 863
Member
I'm an Advocate

I don't know about food causing more ON but I know it affects migraines. One thing I do know is that some 24% of ON patients can have taste and smell sensitivities. I read that in some med journal a while back because I have it. I can crave something for dinner and then after cooking it the smell of it makes me not eat it.
I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult
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