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C2 neuralgia ForumsGeneral & SupportI CANT BELIEVE DOCTORS
03/09/2011 12:08 PM
loricat
 
Posts: 39
New Member

OMG...MY JERK OF A NEUROLIGIST AND I JUST HAD A FALLING OUT BECAUSE I ASKED ABOUT TRIGGER POINT THERAPY! HE SAYS HE HAS DONE ALL HE CAN DO FOR ME..AND ITS NOT GOOD ENOUGH FOR ME! HE HASNT EVEN RUN ANY TESTS..I NEVER TOLD HIM HIS TREATMENT WASNT GOOD ENOUGH I JUST WANTED TO TRY TRIGGER POINT THERAPY..HE TOLD ME TO FIND ANOTHER DOC BECAUSE OVIOUSLY I DID NOT FEEL HE WAS GOOD ENOUGH OR COULD DO ANYTHING TO HELP ME. HE SAYS MASSAGE WILL MAKE MY PAIN WORSE. NOW I AM UP A CREEK! CAN HE DO THIS? WHY IS HE SUCH A JERK GRRR!
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03/09/2011 01:00 PM  Top
Teah
Posts: 151
Member

Loricat, my advice would be to seek a new doctor. This is your life and your pain, and no physician should make you feel as though you aren't allowed to investigate other treatment options. Just because he's out of ideas as far as treatment goes for you, doesn't mean that you can't do anything further, except suffer!

Post edited by: Teah, at: 03/09/2011 01:01 PM

Teah

Sometimes the pain from O.N. can make you want to crawl in a corner and scream to the top of your lungs! So I've learned to cherish the good days when I don't feel like I have an ice pick stuck in my head!

03/09/2011 01:04 PM  Top
xutka
 
Posts: 60
Member

look for another doctor... that jerk needs to go screw himself!!!

by the way... the only people that can give you trigger point therapy is massage therapists who know specialize about it, not doctors... many of them know nothing about trigger points and think cocktails of drugs will solve everything!


03/09/2011 04:02 PM  Top
bmac
Posts: 305
Member
I'm an Advocate

Hi - It has been my experience that when doctors respond the ways yours did, they are upset that they really can't help you or understand your problem. some of them will tell you to seek "therapy" meaning since they don't have an answer, it must all be in you head.

just move on- there are other doctors - some times it does take a while -- I saw six (6) before I received my diagnosis.

hang in there - things will get better - don't panic!

BMac


03/09/2011 05:05 PM  Top
loricat
 
Posts: 39
New Member

I AM TRYING TO STAY CALM....THIS MORNING WAS OK FOR ME BUT TONIGHT MY NECK IS SWOLLEN AND MY EARS ARE BEING WIERD. AND THEN THE WHOLE DOCTOR THING I JUST FEEL LIKE FINDING A CORNER SOMEWHERE AND HUDDLING UP AND CRYING!

03/09/2011 08:02 PM  Top
Teah
Posts: 151
Member

Loricat, if you need to cry then you should, but remember you have to be strong and fight for your health. Having this crazy, painful condition will break you down! Allow yourself to fall down, but you have to keep fighting to get through this cause unfortunately, with this condition, there are going to be days like this. Do you have any medication that can help you to relax?

Post edited by: Teah, at: 03/09/2011 08:04 PM

Teah

Sometimes the pain from O.N. can make you want to crawl in a corner and scream to the top of your lungs! So I've learned to cherish the good days when I don't feel like I have an ice pick stuck in my head!

03/10/2011 08:55 AM  Top
theorchidthief
theorchidthiefPosts: 87
Member

I actually had a neuro tell me he couldn't help me and to leave his office. Just like that. There are some really awful drs out there. After a good cry to my mom, I pushed through it and after several months found Georgetown. Please be strong and push through. When doctors think of themselves as god and can't fix you, it hurts their precious ego (especially MEN). Ignore it and move on. Hugs honey.
I woke up with an excruciating headache on 12/15/09 and it hasn't gone away since. Finally diagnosed with ON in Jan. of 2011. Had ON surgery with Dr. Ducic on March 16, 2011.

03/11/2011 10:06 PM  Top
vbiker
vbiker
 
Posts: 83
Member

Loricat, I'm sorry. I've been there and done that so many times with more docs, neuros and specialists that I've lost count. It's tough and very depressing. Each time I felt like a freak of nature and that there was no hope for me. I've had a handful of docs tell me that I'll never get better. Hell, I remember one neuro telling me that he didn't see anything wrong and that my symptoms must be "voluntary." WTF! Needless to say, I never went back to that quack. However, you have something that I never had (until a few months ago). You have a network of people that UNDERSTAND even when the quacks don't. You're not alone. You're never out of options. Just out of a copay and a few hours of time. It's tough being your own advocate, but you're the only you you have and no one knows you better than you know you. (great, now I sound like Dr Seuss.) Wink
-Scott aka, "vbiker"
(because someday I'll get better and can ride again)

I have had ON since a car accident in 1983, but I didn't get a diagnosis until 2004. I struggle with constant pain and the "other" neurological effects of ON. You can find me on twitter as @asideofpian.
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