Scott - the paper I wrote was only like 3/4 page in length. It's short paragraphs stating how ON has affected my daily life, someone here suggested it.
Here is a part:
"Riding in a car for more than 10 minutes usually brings on pain. Doesn't matter if I am driving or not, front seat or back. The constant movement of my head/neck is uncontrollable in the car. An hour drive = level 8 headache within an hour at minimum.
I've enjoyed sewing since I was a young girl. Made most of my own clothing and my childrens' as they grew up. Crafted extensively over the years. Now I am only able to sit at my sewing machine or crafting table for 10 - 15 minutes at a time. Very difficult to hand sew or quilt, to painful to sit in the position necessary. Same for sitting in same position to do any task, must get up and move often. "
It was helpful for ME to just put it into words. And my doc REALLY needed to know how I felt. He sees me for 20 min. a month. I live with this 24/7 (as all of us here do!) And I didn't write it all at one time. Took many days, kept going back to it. You should try it.
This recent nerve block - I see no change so far. The first block I had, last fall, took 7 days to "kick in", I then had 7 pain free days, then the pain returned in full force. Today, my scalp is still really sore, but duh, I had 20 injections - so no wonder.
In my honest opinion - to go thru the pain of the nerve blocks just is NOT worth a few days of no pain. The recent blocks were 4 areas of 5 injections each. He kept saying "after this first injection, this area should be numb for the next 4". I kept saying NO, IT IS NOT NUMB EVEN THRU #5.
It's weird. He says my scalp would be numb like a tooth does with novacaine, both times I had the blocks. But I couldn't say it was numb, it hurt like hell. (sorry for that). And both times it brought on whopper headaches.
Chloe and Arlet and the rest of you - thank you so much for your support, it DOES help 
Just call me Annie the Bear -since I'm growling alot lately....
