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Occipital Neuralgia Support Group
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C2 neuralgia ForumsGeneral & SupportTalking makes pain worse
02/09/2011 04:51 PM
theorchidthief
theorchidthiefPosts: 87
Member

Is this true for other ON sufferers? Talking makes my headache/ON pain MUCH worse. This is why I much prefer to communicate via text, email, computers.
I woke up with an excruciating headache on 12/15/09 and it hasn't gone away since. Finally diagnosed with ON in Jan. of 2011. Had ON surgery with Dr. Ducic on March 16, 2011.
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02/09/2011 05:10 PM  Top
bmac
Posts: 305
Member
I'm an Advocate

When i was first diagnosed talking made my pain worse. However, I didn't want to text or do emails that's how severe it was.

BMac


02/11/2011 04:20 PM  Top
brugette
brugette  
Posts: 941
Senior Member

I find that sometimes when the trigeminal neuralgia kick in it hurts to eat, talk, etc. Wonder if that's part of it? Just a thought.

Hugs,

Patty

As the group leader I am happy to give you my opinion on issues, but please remember I not a medical profession, just another suferer of ON.

Some days it's not even worth chewing through the restrains.

Same Nightmare, Different Day

02/12/2011 06:56 AM  Top
theorchidthief
theorchidthiefPosts: 87
Member

Thanks everyone! I think just general head pain is going to make talking feel awful...lucky us. Sad
I woke up with an excruciating headache on 12/15/09 and it hasn't gone away since. Finally diagnosed with ON in Jan. of 2011. Had ON surgery with Dr. Ducic on March 16, 2011.

02/12/2011 03:00 PM  Top
cmiller
cmiller  
Posts: 863
Member
I'm an Advocate

Talkig, getting excited, or anything where your blood pumps faster makes it worse which included a rather personal side of my relationship with my husband lol if you get my meaning; that was a killer. I am glad to say that all that has gone since surgery on the areas that are going well. My worst area was my right side and it is pain free now woohoo!

I know the middle back of my head is still affected because if I get upset and my blood pumps faster it hurts only there.

I was really interested to see what Dr. Ducic said toward the end of his lecture about how he found that people who have had the surgery and still get migraines because On and migraines have an area in common as described on his slide and that a migraine med helped post surgery where it didn't help before. I am going to try it next time my head is bad.

I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult
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