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specialboys Posts: 59
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Good afternoon all, Being a new member and trying to gather as much info as possible about pain relief, I was wondering if any of you have used oral steroids to help with the nerve pain. My sister-in-law who is an RN said that they often treat people with closed-head injuries or nerve injuries with steroids, but she wasn't sure specifically in regards to ON. Thanks in advance! Lisa |
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mrsklemme  Posts: 164
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I have never been prescribed oral steroids in response to my ON but over the last 15 years have been on Medrol dose packs more times than I can count for allergies and bronchial asthma. I have never noticed it making the slightest dent in my ON pain but that could just be me. Injected steroids were great for a long time but oral, nothing. Kristin |
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cmiller Posts: 863
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Sorry Specialboys, I have only had the injected steroids into the ON area. How are you feeling at the moment? Hugs, Chloe I am not a medical professional. I sufferered Occipital Neuralgia and had right and left occipital nerve release surgery in 2010.
Before surgery I would throw up almost daily from the severe dizziness and had severe light and sound sensitivity. I stayed in bed, curled up in the fetal position wishing I had the courage to kill myself. If I didn't take a cocktail of antiseizure, opiates and muscle relaxers I suffered hundreds of electric shock type pains per day in my head and had a constant migraine type pain 24/7 from july 2008. I lay grieving for my life that once was the friends who once were and the void in my future.
Right surgery 100% relief; left surgery, scarring grabbed a crown nerve and I had surgery again to relieve that june 2011. Surgery really helped but was left with daily migraines triggered by certain sound pitches making living in this noisy world very difficult |
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specialboys Posts: 59
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Thanks Kristin and Chloe. I didn't think the medrol pack was something that I had read about on this board. 3 years ago when I was diagnosed with trigeminal neuralgia they had me on the medrol pack multiple times with no relief...it wasn't until many months later that I started on Lyrica which has helped control the TN. I am hanging in there....still waking up at 3 or 4 in the a.m. after only a few hours of sleep with racing pulse (100 bpm), so I am calling nuero this am to see what he suggests. It just doesn't make sense that I am taking the clonazepam and still waking up with rapid heart beat. It usually last for 10-15 minutes, then I settle down, sleep for an hour or so and that is it. Then then nausea kicks in. Trying to be positive but it is hard!!! Hope that you both are going to have a great day  Hugs, Lisa |
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MelRose  Posts: 87
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Hi Lisa, I see Dr. Blake, here in Houston. When I was originally diagnosed with ON, I had been taking oral steroids for sinus/allergy problems, it was a pretty high dose. I had been on them for 3 full days, and on the fourth day when I woke up and got out of bed this tremendous amount of pressure came on in my head, my bp went up to 190/110 and I eventually ended up in the ER a few days later, when the tremendous head pain came on. I was thinking that is what started my ON problems. I thought I it was a weird reaction to the steroids. Two weeks later, I found Dr. Blake and was diagnosed with ON and I asked her about the steroids; I was convinced this is what the problem was. She told me that it was not the oral steroids; that oral steroids are used to treat ON. She has given me prescription of a Medrol dose pack to carry with me, when I am out of town, in the event a major episode comes on. I have never had to use it. I still wonder about it. I trust Dr. Blake, but I thought it was awfully coincidental that all of this came on while on the oral steroids. It just doesn't make sense to me. Also, ever since the ON diagnosis, my blood pressure is sometimes erratic and my heart races at times as well. I have also had nausea come on as well too. It's all such a mystery to me. Melanie |
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specialboys Posts: 59
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Melanie, Many thanks for sharing your story....it sounds so similar to mine even though I don't have an official diagnosis yet of ON - the Drs are calling it post-concussive syndrome because it has only been a month since I hit my head, but my gut is telling me this is ON. The fluctuating BP & heart rate have concerned me the most for obvious reasos....not that the pain, dizziness or nausea are fun either, but at least I do my best to take them as they come. I cannot believe how drastically my life has changed in the last month. I am trying so hard to take it one day at a time but it is tough!!! I am sorry for all you have been through but your sharing your story is of great help to me. Take care, Lisa |
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Arlet  Posts: 164
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I only had mild and occasional ON symptoms until Dr. Blake did the nerve blocks in the back. The nerve blocks really set off full-blown ON pain. Dr. Blake then prescribed the Medrol pack to calm the nerves down, but I didn't find it at all helpful. |
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specialboys Posts: 59
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The one time I was on Medrol for pneumonia I felt like I was going to climb out of my skin! And that is how I feel now so I am not certain it is an avenue I will pursue. Thanks for sharing your info |
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SpondyLowSis Posts: 2
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Greetings, specialboys and All, I'm brand new around here. I have been prescribed a 2-week course of the oral steroid Prednisone for my O.N. (about a year ago.) I had never taken an oral steroid, however, and was a university student getting ready to fly off to London, UK to study. I decided it wasn't a good time to try something new like that, not knowing if I would have an adverse reaction, so I never took them.  |
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