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Noonan Syndrome Support Group
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Noonan ForumsGeneral & SupportNoonan Syndrome
05/23/2010 03:39 PM
BioStudent
Posts: 2
New Member

Hello everyone,

I am a High School Biology student in the United States who was recently assigned a research project that concerned rare genetic disorders. I was interested in learning more about Noonan Syndrome, so I based my project on this topic. I want to talk to people who have experienced the disorder personally and who would be willing to write to me about what it is like to either live day-to-day, or care for someone with the Noonan Syndrome. Whatever help anyone can offer me would be greatly appreciated. Thank you.

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09/16/2011 06:34 PM  Top
Chazy0420
Chazy0420
 
Posts: 4
New Member

I would love to help you....though I fear I might not be of much help, as I have recently taken custody of my neice, Deja, who has NS. She is 8 years old and I am just learning all about this and learning how to deal/raise/take care of and child with NS. If I can be of help to you....let me know.

Candy

Candy~~Mommie/Auntie of Deja

Previous discussions I participated in:
My Child - Noonan Syndrome
Hello from Mass!!
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