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Hello, Becky! I want to welcome you to the NF board, and tell you that I am sorry that you did not recieve a response. This group is smaller and has been struggling getting going yet. I am newer to MDJ, but have jumped in, and recently was asked to be the Group Leader of the NF Board. So, initially I am going through and attemting to make contact with all the listed NF members, introduce myself, and also encourage everyone to consider coming back and helping me in growing this board into a phenominal place for support in NF. I am truly sorry for the loss of your brother, and for his deep struggles with Neurofibromatosis. That was quite a severe case, and I can sense the pain you still feel from all of that as well as your concerns for your sweet boy. I hope I can help you with that... I want to let you know that you are not alone, and hope that you will come back & join us on this forum also. Do you have a good physician for your son, qualified in dealing with NF? I look forward to hearing from you, and getting to know you better. (((BIG HUGS))) I'm F.I.N.E. Frustrated, Irritated, Nonfunctional & Everything hurts!! Sarcasm: Embrace it!  ______________________ "The unanswered questions aren't nearly as dangerous as the unquestioned answers." ______________________ I know God will not give me anything I can't handle. I just wish he didn't trust me so much. - Mother Teresa ______________________ "There's always light at the end of every tunnel, just pray it's not a train! "  ______________________ Faith makes things possible, not easy!  |
