Neurofibromatosis Support Group

I went to the Dr the other day, she has now said i have Astham (at age 32 thought i would have got away with out getting it, the rest of my family do get it)

anyway when she was doing the listn to me breath thing she notice what i thought were skin tags and said she thought it could be NF. She also noticed the ones on my arms. I got a little worried at this. I went home and looked at what the other symmptoms are and say the cafe au late spots (sp) which i thought were birth marks and the freakels under arms/groin area.

she is going to send me to a neuroligist to make sure thats what it is, but in the mean time i am scared.. so i spose I am asking what does this mean? will i grow more of the lumps? do they get painful? at the moment i have a few on my back and arms, tummy. and a big lump on my leg (i also thought this was a birth mark) is there any other major health stuff that i can expect if i do have NF...

thanks.

I have gotten many more of these "lumps" I call bumps. I'm 42 I have had this my whole life. As I got older more bumps came out. Lately I'm getting sooo many more. For the first time in my life it is bugging me I also have seizures ,so lost my license 10 yrs. ago I have two of these bumps in my head left temple lobe. I get MRI's every year. All in all I have a pretty good life,boyfriend and family. Just lately I need to meet and talk with other people who are going threw same problems I'm having. I'm new at this computer world,have a bit of comperation problem. I now have this iPad,now working it right, well that will take time Well being scared is Normal , I'm still scared I've had this my whole life. This NF isn't something you will die because of.You will die with it.