Neuroblastoma Support Group

I'm new member of this forum. My daugther is 27 monthes now. She was diagnosed at 18 monthes with neuroblastoma with Opsoclonus-Myoclonus ataxia. since then she had an operation for taking part of the tumor (but not all), and then chemotherapy, prednisone, and IVIG. She has finished chemotherapy, but still have other treatment. The chemotherapy didn't have effect on the tumor. Since when she has her crisis on last july of Opsoclonus-Myoclonus ataxia (the reason we went to the hospital), her situation has greatly improved. She also had hip dysplasia since she's 4 months, so she was until one year old immobilized. So with everything she had, she began to walk at 21 monthes. She's still very nervous, having difficulties for sleeping. Before last july, she was telling some words. In July, with OMA, she stopped to talk at all. Since then, she said again Papa, Mama and her name. but that's it. She tries to say words, but she couldn't. So I would be pleased if somebody can tell me how I can help her for the language. I have to say that we live in Switzerland and there is not really help or information on this. Doctors are not very worried for the moment, but I think I can't leave her without helping her. thanks a lot for your help. Agnès (and sorry for my english as I use to speak french)