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What has helped you Part 2



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07/15/2008 21:46
oliviamom
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lisas mom - how are things going post surgery
My daughter is 17 and has had NDPH since January 2006.
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07/16/2008 20:34
Lisasmom
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It's been 3 weeks since Lisa's surgery. Today we saw, Dr. Blake, her neurologist. She said all of Lisa's symptoms are normal for her recovery time and that it's "way too soon" to determine the full results. She explained that it just takes time for the nerves to recover from the surgery and also from being compressed for such a long time. For now, her headache is ranging from a 2-5/10 and can be lowered some with Toradol. (Today she prescribed Ultram.) This in itself is a big improvement from the sharp pounding headache that stayed around a 7 or 8/10 and effected most of her head. We were a bit concerned last week when she started waking up with the headache and the Toradol wouldn't get rid of it completely as it did the week after her surgery. But after our visit with Dr. Blake today, we are relieved and encouraged and we will try to be patient to wait the next two months to determine the full effect of the surgery.
October 7, Lisa had her second nerve decompression surgery, this time on the nerves on the front of her head.

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    Paying the price.
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08/06/2008 16:25
amberspain79
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going to the chiropractor helps alot. i dont get migraines if i get an adjustment every week. does nothing for the baseline pain unfortunelty.

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10/14/2008 21:30
JaimeAus
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I guess I have nothing new regarding treatments to add here...just thought I'd say what works for me. I have tried many different meds, but none really helped much for my Occipital Neuralgia, except Amitriptyline, although it made me so sleepy. The only thing that has worked well is the nerve block. I've been having O.N. blocks for the last 12 months, and they have often lasted 2 months or more!

~Jaime~


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10/15/2008 06:54
MaryR
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I am glad you have been able to find things that have worked so well for you! Two months sounds WONDERFUL to me right now.

I added your screenname after the things you mentioned so that if people have questions about a particular thing they can look up a member who has experience with it. In your case, they can ask you about occipital nerve blocks or Amitriptylene. I don't know if anyone is actually doing that, but they could if they really want information (and I would if I was considering nerve blocks. I would be so nervous I would want all the details I could get). Thanks for posting your experiences.

Mary
NDPH support group leader
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10/16/2008 23:49
Brendasue56
Posts: 15
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Namenda has worked miracles on my sons daily headaches. He takes 10 mg three times a day. The same time every day. His headaches are at a minimum now.
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