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08/20/2007 02:37 PM

chiropractor

rnvt
Posts: 8
New Member

Has anyone seen a chiropractor about NDPH? Has it helped? I have an appointment with one this week. When i told him on the phone that my headache specialist diagnosed me with NDPH he said "that's a garbage term. it doesn't really mean anything." i know chiros and doctors dont see eye to eye, but so far nothing the doctor has done has helped, so maybe a chiro would be a good idea?
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08/20/2007 04:31 PM
andwoo
Posts: 101
Member

It's not a garbage term, and I'd be skeptical of a chiropractor who told you that. I went to one that I liked a lot. He told me that he had good success with tension style headaches, less success, though occasionally some, with migraines, and had never heard of my diagnosis before but that I should give it two weeks and see what happens. Nothing happened for me.

08/20/2007 06:46 PM
MaryR
MaryR  
Posts: 4121
Group Leader

I tried a chiropractor. He was convinced that he could cure my headaches (though I don't think he had ever heard of NDPH...he never said anything about it one way or another). All his stories of cures involved ladies of a "certain age" generally going through or after menopause and he had a lot of success with them. I was 27, distinctly not in that category. Anyway he tried really hard and even treated me for free for over a month when I lost my job. It didn't help the headache but my spine felt great. I am skeptical of anyone in the medical community, even the alternative medical community who calls a diagnosis a "garbage term". If he means it is not well understood and difficult to treat then he should just say that, but as we see on this board we who share the diagnosis share a lot of the same experiences as well, which makes the term meaningful even if it doesn't help with how to fix it. In my experience the chiro was worth trying, just so that I would know I had tried everything I could. If my headache had been tension related, I think it could have done a lot to fix it.

I had another chiro who later wanted to work on me that I did not go to because he pretended to know more about NDPH than he really did. He acted like he was familiar with the diagnosis but then started saying stuff that since I have researched I could tell he was just making up or else had confused NDPH with some other conditions badly. He thought he knew exactly what caused it and how to cure it. He also thought that there are a bunch of headache syndromes called the "new dailies" and that he can cure all of them. I can respect someone saying "I have never heard of that but I would try this" but not making up junk and trying to pass it off as knowledgeable medical advice.

I guess I would say try anything but you may or may not want that particular chiropractor. Especially since it sounds like he is going to be fighting against your neuro (telling you not to take meds and to take only herbal stuff). If you can find one that respects traditional medicine a little more that may work out better if you are going to see him long term. My chiro didn't really like me taking all my meds but didn't push for me to be off them either since I was in so much pain. I did have really great spine and neck care when I went to him, but it didn't fix my headache. If my pain had been caused by something really related to my spine I am pretty certain he could have fixed it. Mary


08/22/2007 11:02 AM
kymark
kymarkPosts: 106
Member

I saw several chiropractors in the first 3 or 4 years of my headaches (I'm starting year 19). At the time, my headaches had a lot of neck and shoulder tension associated with them, so chiropractic made sense, even if I don't buy into their general philosophy that all health flows from spine alignment.

What struck me is that each of them (I moved around a bit during that time frame) would have happily taken my money indefinitely, even without any prospect of positive results. In contrast, other providers such as acupuncturists and physical therapists did their best and then said "sorry, we can't do any more". Similarly, my current neurologist will try a new med for several months, then move on. So, in my book, it's best to watch one's wallet pretty closely around chiropractors. Andwoo had a different experience where the chiropractor said "give it two weeks and then reassess." That was not my experience with any of the chiropractors I've seen.

So, I don't think they generally do much harm, other than lightening the wallet, but I'm dubious about the good they do as well.


10/09/2007 11:59 AM
xntj
Posts: 19
New Member

I saw my local chiro for some lower back pain ("lumbago" is a real condition not just something like the vapors believe it or not), and he asked about my headache in the course of his general intake interview. He listened to my report of my diagnosis and looked at my CT films and said "I don't think I can help you, I wish I could." He did a terrific job on the lower back pain and some subsequent mid-back out-of-whack discomfort I had, and I when was better wished me well. A credit to his profession. I would have happily have had him try to help the head.

Over the years, I've learned there are different schools of chiro and/or philosophies. Some are conservative in their views of what they treat and how they treat. Others are shall we say a bit more expansive. . . the supplements are a whole other topic. It's worth surfing the web for the different points of view on that topic before pursuing.


10/09/2007 04:55 PM
blueyes
Posts: 2
New Member

I went to a chiropractor and he was not able to to anything to help my headache. I had 8 adjustments and after $500 I stopped going. The adjustments made my lower back feel great, but NO help at all with the headaches!!

10/09/2007 05:17 PM
MaryR
MaryR  
Posts: 4121
Group Leader

Sorry it was no help to you. That is similar to my experience. My neck was where he worked the most and it felt great! My head hurt just as much though. At least I know that I didn't miss a cure for lack of trying.

01/03/2008 11:44 AM
bgcmom
bgcmom  
Posts: 246
Member

I was wandering if anyone had tried chiro. for NDPH or not and sure enough...here is a thread on it! It just so happens that we were considering trying chiro and then my husband hurt his back and went to his regular chiro (whom he hadn't seen in a few years). He mentioned our daughters NDPH dx. and symptoms. He immediately told us of people he'd helped and how traditional doctors are misunderstanding what to do about the c-2,3,5 that get out of line and cause the headaches. He asked my husband where she hurt and he showed him--he said C5 is probably what is causing it...which is exactly what our headache specialist (pedi. neuro) said when he examined her the first time. So...maybe he is onto something! He did tell him that he just didn't know what to do to fix it..and the chiro. does. Our Pedi-Neuro did say that we should consider acupuncture/pressure, reflexology, pain management doc, biofeedback, if we went to a chiro. NOT to let them crack her neck!! Didn't explain why though. When I discussed it w/the chiro. he said if the MRI/CT are normal, then any gentle manipulation he did wouldn't hurt anything---even if it is increased/decreased intracranial pressure causing the headache, he just said it wouldn't do anything one way or the other if that was the cause. He said he wouldn't do anything unless he sees that she is out of alignment. He doesn't charge for kids when he's actively treating a parent. I have been to him in the past and my husband is currently going, so she will be free. We went ahead and made an appt. IT's WORTH A TRY, I guess. He wanted to try to help her, before she goes for her spinal tap tomorrow. He felt like he might could help prevent her needing it! (maybe!?!) So...to possibly help her, we are going to give it a go. He did say he might be able to help w/out manipulating. I'll let ya know how it goes! It would be something if it helps!

As far as NDPH goes, he hadn't heard of it, but wanted me to bring in an article about it, so I am. He did say that it may be an umbrella diagnosis---when they don't know what to call it or what to do w/ya anymore! (but I think he just was unfamilier w/it, but willing to learn more about it!)

Hopefully it will help!


01/03/2008 02:31 PM
MaryR
MaryR  
Posts: 4121
Group Leader

I don't know if it is relevant, but my chiro tried to crack my neck a couple of times and couldn't do it...and it HURT. Didn't change my head pain, but my neck wouldn't move that way. He decided to adjust that particular vertabrae a different way and that other way(laying down...I couldn't tell you exactly what he was doing)was fine. None of what he did really helped the headache (didn't hurt mine either), but there may be a good reason not to crack the neck. I hope it helps your daughter. Since we don't know what causes NDPH it is really hard to say what will or won't help. Just because it didn't help me doesn't mean it won't help her. Let us know how it goes.

01/07/2008 10:46 AM
bgcmom
bgcmom  
Posts: 246
Member

Well...he manipulated (cracked) her neck slightly and ever so gently. It didn't hurt her neck at the time. But...IMMEDIATELY upon standing up, her head hurt and she started crying. She said it brought her pain from a 7/10 to a 9/10. So, we were thinking maybe it was an increased pressure thing (until the Neg. LP) Anyway, he wanted to see her the next morning again...DIDN'T Happen...she refused! (can't say I blame her if the pain was worsened.) She still hurts, but not her neck---just the headache.

We won't be trying this again (for a while).

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