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"To support MM." (alpacalady)

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aTinaL"To me, Mdjunction comes down to motivation. The support and information I have found here motivated me to take a very proactive stance regarding my illness. This led me to find medication and doctors that are giving me my life back.
More important than even the motivation, though, is the friendship I have found at MDJ. I have made some of the best friends of my entire life right here in this group. Even though most of us have never met, it feels as if we have known each other for years.
If Angels walk among us, and I believe that they do, most of them are here at MDJ.
" (aTinaL)

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03/11/2009 07:26 AM
jrz30
jrz30
 
Posts: 465
Member

Maybe the cause of our pain is somewhere we haven't looked, has anyone asked their docs about a full body CT scan or something similar?
Jonathan
-I have had NDPH since April 22, 2007
Reply

03/11/2009 11:07 AM  Top
Lizrod
Lizrod
 
Posts: 152
Member

OMG Jonathan, we're on the same page on this one for sure. I have an appt on the 19th and I'm going to ask my PCP that exact question. I have a feeling something is awry with my spinal cord hence occluding the blood flow to my brain / eyes. And I think it accounts for the relentless nausea I have as well. I am going to ask for a head / spine CT or Xray. Will let you know the outcome. Nice to see you back here Jonathan. Hope all's well with you and yours.. Aloha ~ Liz
I wear this ribbon because I have been disabled by an unknown pain in my eyes. I was diagnosed with NDPH at Mayo Clinic July 2008 and Sunct Syndrome in June 2007. I fit several different types of headache diagnosis's but no treatment / medications have been effective. I lost my left eye to a spontaneous detached retina at age 19. I wear this ribbon because I believe there's an answer / cure out there; despite my affliction is approaching two years.

03/11/2009 11:07 AM  Top
drmeows
drmeows
 
Posts: 1279
Senior Member

I imagine getting insurance to pay for that would be a challenge but it would be interesting to see if they would find anything out of the ordinary with it.
-drmeows
wife of NDPH sufferer since June 25, 2005

My advice is purely personal. I am not a Doctor and nothing I say should be a substitute for getting proper medical diagnosis and advice.

03/11/2009 01:36 PM  Top
jrz30
jrz30
 
Posts: 465
Member

I don't have insurance here so that isnt a problem for me if I get a prescription for it. I will ask my docs soon.
Jonathan
-I have had NDPH since April 22, 2007
Reply

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