Why wear a ribbon?

"For people with migraines and who are disabled." (Lazy1)

MDJunction to me

"MD Junction is my second home, Where my friends are always ready with advise , compassion and a kind word or two. Where I can always be myself never having to put on a brave face or smile if I don't feel like it.
Thank you MD Junction
" (mpmom)
We comply with the HONcode standard for trustworthy health information:
verify here.
New Daily Persistent Headache (NDPH) Online Support Group
A community of patients and friends dedicated to dealing with NDPH and other chronic headache conditions together.
Join This Group
Related Discussions:


04/27/2007 14:27
kate_cakes
Posts: 7
New Member

Send a PM
Give a Hug
I'm wondering if anyone's has had a similar experience. I get migraines on top of my regular constant headache. Sometimes I can go three months without one, and sometimes I can have periods of time where they are more than once a week. Before my headaches started I had never had a migraine, and there is no history of migraines in my family. Three months into my headache, I got my first migraine. Has anyone experienced something similar? Or had migraine-like headaches? I know ndph headaches can be both migraine-like and/or tension-like. I know it's a stretch, but I'm just wondering if maybe migraine and ndph are somehow related.

Popular posts by kate_cakes
    Sleeping / Rest
Reply  


04/27/2007 14:44
andwoo
Posts: 95
Member

Send a PM
Give a Hug
I believe current medical thought is that NDPH more resembles migraines than tension headaches, but as far as being related, I'm not sure, but I wouldn't think so. That doesn't mean that whatever is causing NDPH isn't also a trigger for migraines in some people but that treatment-wise, at least, NDPH does not respond as well to migraine medication, i.e. Topamax, or migraine abortives, as migraines, so in that sense, I don't think they're related.

I've talked to a few other people on other sites who experienced similar situations such as yourself and they went on migraine preventatives for that, and they worked pretty well, from what I remember.

Reply  


04/27/2007 15:12
kate_cakes
Posts: 7
New Member

Send a PM
Give a Hug
Migraine preventatives haven't done anything for me, and migraine abortives only seem to get rid of the migraine and not the ndph, which can be migraine-like. I am extremely sensitive to abortives however, because taking them just once gives me rebound headaches and is directly related to an increase in migraine frequency. I understand what you're saying, I feel that perhaps whatever is causing the ndph may make me more sensitive or susceptible to migraine, but you're right to point out migraine medication does little for ndph. The two are certainly distinct. aaah... I don't know what to make of it though.

Actually this makes me wonder about a 2006 article by Dr. Rozen about elevated CSF tumor necrosis factor alpha levels in ndph and chronic migraine.

http://www.blackwell-synergy.com/doi/abs/10.1111/j.1526- 4610.2006.00722.x

It says that levels were elevated in 19 out of 20 ndph patients and 16 out of 16 chronic migraine patients. Does this mean anything? I'm not a scientist or anything, but what are the chances this actually sheds light on ndph, or is it just a coincidence?


Popular posts by kate_cakes
    Sleeping / Rest
Reply  






04/27/2007 15:34
elisemarcel
Posts: 26
New Member

Send a PM
Give a Hug
I have never had anything like a migraine since the onset of my headache, although I did have a history of very few (like 3-4) migraine episodes during my early teens. Those few migraines are what constitute my headache history before my NDPH - I never had any tension headaches or anything.

I've tried migraine abortives with no effects as well. It is interesting to hear that some NDPH resembles migraine pain - I have never heard that, and my pain is nothing like a migraine. I can't imagine what this condition must be like for those individuals!

Reply  


04/27/2007 15:39
andwoo
Posts: 95
Member

Send a PM
Give a Hug
Yeah, i had nausea 24/7 with my headache when it started. I think the Topamax made the nausea stop around Jan/early Feb since it stopped, but in the last week, my stomach has felt strange, so I'm really hoping that the nausea isn't starting to come back.
Reply  


04/30/2007 16:45
tdeannie
Burgundy Ribbon
Posts: 37
New Member

Send a PM
Give a Hug
How is your stomach feeling now Andrew?
Reply  


04/30/2007 21:44
ladyjock
Posts: 1
New Member

Send a PM
Give a Hug
I have been a migraine sufferer for a long time. Recently my neurologist thought I was rebounding to my migraine medicine so I started intravenous treatment of DHE. I had treatments for 4 days every 12 hours and 3 days of once a day. That means that for the past seven days I have not taken Imitrex, Fiorinal, or Tylenol 3. Now I am starting Topomax. I am not sure if I am NDPH, but I have not had a day without a migraine since...for ever. How would I know?
Reply  






04/30/2007 22:02
andwoo
Posts: 95
Member

Send a PM
Give a Hug
tdeannie: It's doing a little better, thanks for asking! It's still feeling a little strange, which is disconcerting, but it is what it is, I suppose, so we'll see.

ladyjock: NDPH differs from migraine in a few ways, even ones that occur every day. There are a few types of Chronic Daily Headaches, of which NDPH is the rarest. About 2-3% of the population suffers from CDH, and they say maybe 3-4% of that population has NDPH. There are a couple of CDH's that are migraines. This link will help explain those better than I could:

http://www.jaoa.org/cgi/content/full/105/4_suppl/23S

Basically, what distinguishes NDPH from migraines is that NDPH is, in almost all its suffers, continuous from onsent, 24/7, with no break. Over 80% can state the day that the headache started because most NDPH suffers did not have any prior headache history. I know mine started on Nov. 6, 2006. I just woke up with a headache and nausea, and the headache has never left. The nausea, for the most part, is gone through medicine. Also, NDPH is the most treatment resistant form of CDH there is. Some drugs work for some people, but there is no consistent drug regime that can be said to work for the majority of patients. The above link is a good background on it. Here is another.

http://headaches.about.com/od/otherheadpain/a/ndph.htm

If it's something that you think you may suffer from, I would talk to your neurologist about it. I would also bring in the articles as well, since depending on where you are, some may not be too familiar with it.

Reply  


05/07/2007 16:10
sandunbaby
Pink Ribbon
Posts: 31
New Member

Send a PM
Give a Hug
I suffer a lot from migraines, I know that mine are caused because of a problem with my spine and the tendons, but the headaches keep increasing in their frequency since I had my son, now I get them almost four times a week and when my husband annoys me they start. I don't like to take medicine, but I do take Aleve and it helps lessen the pain it does not go away but it helps me deal with my son throughout the day.
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved